Patient Voice

Learn about Patient Voice on our blog


It takes courage to live with a chronic illness. It takes courage to be a prisoner in your own body. It takes courage to know that what you have isn't a cold or flu that has an expiration date. It takes courage to go to sleep at night knowing this nightmare won't end...

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For the Missing

I went missing years ago Some don’t even know That I spend most days away, inside And then my illness doesn’t show I can’t show all the pain I feel Or fogginess or dread No one sees my energy gone Or the tears I often shed It’s not that I’m just tired Or need to...

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We See You. You are Not Missing to Us.

On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day.  The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.

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