Follow us on social media

Patient Voice

BHC Partners with UNREST Premiere at Sundance

After years of work and hundreds of hours of footage, Jen Brea’s documentary, now entitled Unrest, recently debuted at the Sundance Resort as part of the Sundance Film Festival. The Bateman Horne Center (BHC) was honored to partner with Ms. Brea and Unrest on one of several screening events. On Sunday, January 22nd, BHC helped fill a theatre with…

Read More

My Story in Art

When you are living with chronic illness like ME/CFS and Fibromyalgia, engaging in healthy grieving can be among the many challenges. You may face periods of shock and numbness, denial, anger, and intense emotional pain. Experts say it is essential that you engage your grief reaction and practice patience with yourself as you learn to express…

Read More

Patient Voice – Back to School

Topic for September: Tell us about something your chronic illness has taught you. Living with ME/CFS and Fibromyalgia, so much is lost, but many tell us of the things they’ve gained as well. How have you learned to live a full life, in spite of living with a debilitating disease? Have you had moments when you thrive? What…

Read More

Finding Recreation Again

When someone is living with a debilitating chronic illness, one of the first things come to an end is any kind of recreational activity, for self and for the family. There are a number of adaptive recreation organizations across the US that can help people of all abilities – even ME/CFS and Fibromyalgia – enjoy many activities again.…

Read More

Ten Minutes in Living Color

In this entry of the Patient Voice, Anne shares how her love of quilting, and carving out just a few minutes at her longarm frame, brought her ten minutes in living color – a sense of normalcy and bliss. If you have a similar story to tell, please share it with us. Learn more about…

Read More

Parenting a Child with ME/CFS

Parenting is one of life’s greatest challenges, made all the more complex if your child has a chronic illness like ME/CFS. We want you to know that you have options for building a strong network of support to help cope with the challenges of special needs parenting. Written by a mom who walks this road with…

Read More

Patient Voice – Brave, Strong, and Smart

Topic for August : Tell us about a time when you felt brave, strong, or smart. What were the circumstances that led you to that moment? Who helped you get there? Living a life with ME/CFS or Fibromyalgia is one full of challenges. But as a wise Christopher Robin once told Winnie the Pooh, “Always remember, you…

Read More

Chronically Ill Tea Party

This past May – May 12th International ME/CFS and FM Awareness Day – BHC patient and friend, Jo Ivie, decided to put a positive spin on the day and do something personal and close to home – she hosted a Chronically Ill Tea Party. We thought it was such an amazing idea that we asked her if we…

Read More

Instant Relief

Relief can come in the smallest of moments and simplest of gestures. In this edition of the Patient Voice, Darla shares how a brief conversation with an empathetic professor gave her the release and instant relief she had prayed for just moments before. Darla is a writing tutor and editor who has had ME/CFS for seven…

Read More

Facebook Friend Extends Real-Life Act of Kindness

In this entry to the Patient Voice, Mark tells us about a time when he was met with a radical kindness that he didn’t expect – all because of a simple Facebook post. Mark shares how he has found the chronic illness community to be one of great kindness throughout his illness journey. If you have a…

Read More