Physical Therapy Must Catch Up: Teaching ME/CFS Is No Longer Optional Following a high fever at eight, I...
Patient Voice
The Youngest Victims: A Mother’s Perspective on Long COVID Research and the ME/CFS Reality We’ve Lived
As a mother who has watched my child suffer with ME/CFS for ten years, I felt a complex mix of validation and heartbreak reading the groundbreaking study published in JAMA Pediatrics. Finally, researchers are documenting what I've witnessed firsthand: viruses can...
Borrowing and Holding Onto Hope: A Journey Through Long COVID and ME/CFS
Borrowing and Holding Onto Hope: A Journey Through Long COVID and ME/CFS Living with Long COVID and ME/CFS means facing uncertainty, loss, and often, unimaginable suffering. But it also means discovering resilience in ways few can understand. One patient’s story...
Sigh
Sigh By Lori Harpell 3/25/2024 Feeling like a deflated balloon, Swirling in a dirty gutter... Hazel is confused, Bob is worn out... Bathroom to recliner, Recliner to bathroom... Hours resting with closed eyes, Listening to the quiet sounds outside... A bed bath, A...
Me and my ME
Me and my ME Who is me, or rather who am I, and what is ME? My name is Dr Bear Lawrence, and I’ve enjoyed an interesting life. I’ve worked as a delivery driver in Norway, a helicopter tour pilot in the Caribbean, and a flight instructor in Oregon. In the UK I’ve been...
Stuck with ME
Stuck with ME Let me tell you a little bit about ME I am a monstrous intruder I am your worst nightmare You do not want an invasion from ME I break in through the tiniest cracks anyway There is no avoiding ME I creep in when you least expect ME I am a perpetual thief...
Persephone Enters the Underworld
Persephone Enters the Underworld/Thanksgiving Table 11/26/23 Grieve for me Mother because I am gone. No, I was not stolen or taken. I did not fall, Slip. Truthfully I cannot tell you how I got within the winding corridors of death. But here I am. No, Mother I will not...
Slowly Dying
**Trigger Warning. This poem may be difficult to read for some individuals. Please take care. Here is a link to BHC's Crisis Resources page.** Slowly Dying I'm on earth, and I no longer feel like I'm living; instead, I'm slowly dying. It's like being in a...
You & M.E.
You & M.E. Grief that remains a forever process. Revolving door, repetitious. The body I once took for granted. The endless energy I once had. Nothing good comes from resentment. Evaluating the symptoms present. They come and go, multisystem involvement. I feel...
A Good Day…
-Margo This was submitted as part of the Reflections of ME/CFS and FM and Long COVID Awareness Day Virtual Event on May 9th, 2023. #MillionsMissing #MillionsMore #Hope4MECFS #Hope4FM #Hope4LongCOVID #patiencevoice
The Cost of ME/CFS: An OT’s Lived Experience
Occupational and physical therapists have traditionally been trained from a rehabilitation perspective to treat a wide or diverse range of medical conditions. Many principles of rehabilitation can be applied to various spectrums of chronic health conditions....
Watching the World
Watching the World I open the door from my room I watch the world People in school for degrees People on sunny sandy beaches People winning awards People on trips with friends I love watching everything I dream of joining in I wonder about being part I close...











Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career – the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.