Patient Voice

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“Reflections at Year 5”

“Reflections at Year 5”

Reflections at year 5… On top of the world, amazing career, a perfect life Until suddenly I wasn’t Why me, why now? But why not me? Unable to stand, to eat, to sleep, to think Where had I gone? An end, and then a foreign uncharted path Time eased some burdens, some...

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Courage

It takes courage to live with a chronic illness. It takes courage to be a prisoner in your own body. It takes courage to know that what you have isn't a cold or flu that has an expiration date. It takes courage to go to sleep at night knowing this nightmare won't end...

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For the Missing

I went missing years ago Some don’t even know That I spend most days away, inside And then my illness doesn’t show I can’t show all the pain I feel Or fogginess or dread No one sees my energy gone Or the tears I often shed It’s not that I’m just tired Or need to...

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