Patient Voice

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For the Missing

For the Missing

I went missing years ago Some don’t even know That I spend most days away, inside And then my illness doesn’t show I can’t show all the pain I feel Or fogginess or dread No one sees my energy gone Or the tears I often shed It’s not that I’m just tired Or need to...

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We See You. You are Not Missing to Us.

We See You. You are Not Missing to Us.

On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day.  The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.

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When Mommy Can’t Dance: How to Be a Chronically Ill Mom

When Mommy Can’t Dance: How to Be a Chronically Ill Mom

It’s a hard to be a sick mom. For most mothers, a few days of illness may mean a back-up of laundry and a night or two of frozen pizza or cold cereal for dinner. For those of us moms that are chronically ill, it’s a whole other ball game. Certainly we have to adapt, get creative, and employ as many mom hacks as we can (i.e. Amazon prime, grocery pick up, self-serve kid snacks, and yes, we still have an above average number of cereal dinners). Beyond the physical demands and limitations, however, are the mental and emotional obstacles that we face. The mom guilt is present enough when you are healthy; it can be even more crushing when you are not.

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Patient Voice – Meditate to Find Peace

Patient Voice – Meditate to Find Peace

Three years ago, Megan Hastings began most mornings with a quick run and some meditation. Today, the effects of her illness make running impossible, but she finds she can meditate to bring comfort and peace. The practice helps her to reduce stress, increase...

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