When Cortene contacted BHC with an idea, and an early draft protocol designed to test CT38 as a treatment for ME/CFS, Dr. Suzanne Vernon and I agreed to help them refine the protocol and conduct the trial. The Cortene-funded trial was an FDA and IRB-approved...
Frontiers in Systems Neuroscience published the study results of Cortene Inc's investigational drug CT38 in people with ME/CFS. The trial was conducted at Bateman Horne Center and Suzanne Vernon, PhD, wrote a blog post providing context about the study. Cortene Inc....
In 2018 the Food and Drug Administration approved a physician-sponsored Investigational New Drug (IND) Application, to investigate the safety, tolerability and efficacy of CT38 in the treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Dr....
To a loved one of someone with a chronic illness: The intention behind this letter is to share the importance of believing and validating your loved one with chronic illness. This may seem simple, and perhaps even obvious, but the power behind these actions can be...
Introduction It is hard to know how to support others when their health becomes compromised. It can leave you feeling powerless and unsure of what to do. It is even harder when your loved one is afflicted by an “invisible illness.” An illness where there isn’t a cast...
Share Your Message of Hope It’s time to start preparing for ME/CFS and FM Awareness Day! This will be our 2nd annual Messages of Hope virtual event. There will be a line-up of speakers (announced soon), a poetry reading, release of Believing Your Patient and Believing...
COVID-19 has changed our world and at least 10% of those who become ill may have long term effects. These “long haulers” have many similar symptoms to ME/CFS and FM patients. It is critical for BHC to join the assessment, treatment, and education of these patients...
We all have extra on our plates this year, and many coping skills, such as spending time with loved ones and being in community, are not as accessible when we are living with a chronic illness. Stress levels are rising and when stress levels rise, chronic pain and...
When I first started developing patient and provider education on ME/CFS/FM, post-viral illnesses and related conditions, I had no idea just how transformational one year could make in my role. The precedence placed on increasing the medical community's understanding...
It's Research Week at Bateman Horne Center! This means that as part of our Mission Possible giving campaign we fill you in on why research is so important to our organization and how we are using it to improve the lives of those with ME/CFS, fibromyalgia, post-viral...
Turning a Self-Report Questionnaire into a Wearable Device Well-defined and reliable tools are needed for objective diagnosis and to measure clinically relevant outcomes of treatment for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The 2015 Institute...
Prior to joining the team here at BHC, I worked as a rheumatologist, specializing in a host of autoimmune diseases. Rheumatologists are often inundated with referrals for complex multisystem illness presentations, and we frequently encounter complicated patients...
