The Alone
One Room, four walls, two windows, one door and one bed.
The Alone
Minimal
Silent
To survive in The Alone acceptance is mandatory
No choice
Letting go
Floating, untethered
Existing in a void rather than a place
Dry and suffocating
The world gradually recedes
The Alone becomes comfortable
Necessity
Intermittent contact
Friends slip away
Family lives outside
The Alone
None can see or feel
The Alone
Real recedes
Everyone is beyond the wall
Mourn and accept
Always accept
Too many tears
Too many silent screams
Too much sobbing in the closet
The Bed is the companion, always there, always steady
The bed comforts and accepts
Doesn’t understand that it can’t replace The Human
Voice
Touch
Contact
Overwhelming
The moaning silence of the void swells
The tethers hold fast
The windows tempt and taunt
The Outside is not possible in The Alone
Inside looking out folds the body into a sore, intolerable nausea
Throat closes and chest tightens
Closing the blinds in The Alone blocks what might have been
The Door mocks the bed
The bed is too big to fit through the doorframe
The frame blocks emotion and feeling
Squeezing out self
Exhaustion and pain are the sentinels
Silence and tears the barbed wire of its fence
The walls are ever seeing, ever present
Their weight is oppressive and blank
They never recede
The Alone has walls of invisibility
Always there, always inanimate
Hard, uncaring and disinterested
Vacuous
Only there
Fear hides tucked away into the corners of the room
When ready its long tentacles slide unseen down the painted surfaces
Piercing the dull routine of The Alone it glides across the bed
Sucking out the spirit of the prey
Replacing it with the venomous ooze of dread
Paralysis sets in and fear annihilates
Nothingness looms
by Daphne
This poem was submitted as part of the Reflections of ME/CFS and FM and Long COVID Awareness Day Virtual Event on May 9th, 2023.
#MillionsMissing #MillionsMore #Hope4MECFS #Hope4FM #Hope4LongCOVID

Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career – the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.