Dear Community, Although today is designated for remembering and reflecting on those with Severe ME/CFS, please know that you are in my thoughts every day. I have a photograph of a piece of artwork submitted for ME Awareness Day a couple of years ago. It is entitled...
What is Myalgic Encephalomyelitis Like? A Patient Perspective A project by Pillow Writers ©2024. The authors consent to the use of material in this publication, in whole or in part, for the purposes of public and medical education. Authored by Pillow Writers (2024)....
This cartoon with audio description was submitted for the awareness reflections video May 2024.
Sigh By Lori Harpell 3/25/2024 Feeling like a deflated balloon, Swirling in a dirty gutter... Hazel is confused, Bob is worn out... Bathroom to recliner, Recliner to bathroom... Hours resting with closed eyes, Listening to the quiet sounds outside... A bed bath, A...
Stuck with ME Let me tell you a little bit about ME I am a monstrous intruder I am your worst nightmare You do not want an invasion from ME I break in through the tiniest cracks anyway There is no avoiding ME I creep in when you least expect ME I am a perpetual thief...
Since the recent release of the NIH intramural publication detailing findings from the ME/CFS Inpatient Study, there has been a whirlwind of impassioned commentary. While we harbor mixed sentiments about the paper, we've committed professionally to maintaining an open...
Galen Warden is the mother of an adult son with severe ME/CFS. Bateman Horne Center partnered with her to provide essential guidance on caring and advocating for individuals with ME/CFS. This blog post includes: Galen's video presentation Galen's presentation slides...
"Over the last 28 years, I have mostly worked in rural primary care settings in Maine and Hawaii. I never would have thought that my rural health care experience would be a perfect training ground for managing post-infectious fatigue syndromes. Rural medicine taught...
This past summer, we completed an open-label, proof of concept trial using a combination of valacyclovir, the generic form of Valtrex, and celecoxib, the generic form of Celebrex to see if it improved symptoms in women sick with Long COVID. The combination of these...
Today we are marking the successful first year of the Medical Education Resource Center (MERC) at BHC, supported by Open Medicine Foundation with a message from our Education Director, Tahlia Ruschioni. I am often asked when we will know that our medical education has...
I met Armin Alaedini in 2008 at a meeting in San Francisco that was about solutions for Lyme and other tick-borne diseases through cutting edge science. I was fascinated by his presentation on immunological findings in post-treatment Lyme disease and I approached him...
Appendix 2: When someone you care about experiences a crash, it can be scary and leave you feeling helpless. This resource aims to equip you with knowledge and insights from caregiver-to-caregiver on ways to support and alleviate the suffering of the person experiencing the crash (referenced below as the patient).
Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career - the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.