#MillionsMissing Logo

On Tuesday, May 12th at noon, 110 people, reclined, sat and stood gathered around Zoom powered computer screens to commemorate ME/CFS and FM Awareness Day. BHC partnered with Rebecca Cain, #MEAction Utah Representative, to conduct the live virtual #MillionsMissing event. (Link to recording at the bottom of this post.) The SARS-CoV2 pandemic has changed the…

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#GivingTuesdayNow

The COVID-19 pandemic has impacted our world in unexpected ways and brought new challenges to the ME/CFS and FM (Myalgic Encephalomyelitis and Fibromyalgia) community of patients and their advocates, researchers, medical providers, and health educators. The Bateman Horne Center (BHC) is among the many health care specialists experiencing these impacts first-hand. With limited or no…

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Dr. Bateman traveled to Petaluma, California for a ME/CFS benefit concert on October 5, 2019. This benefit concert featuring singer-songwriter, Marian Call, was designed to entertain, inform, and raise awareness for this debilitating disease. Marian Call’s sound is clever and unique, by turns humorous and heartbreaking; the perfect fit for an audience comprised of those…

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Pema Chödrön is an American Tibetan Buddhist. Pema has led extensive discussions on working with chronic illness, specifically ME/CFS.  A generous and anonymous donor has secured permission to share this video clip with our community to assist patients with this helpful coping discussion.

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Suzanne D. Vernon, PhD, Research Director

The research team at RIKEN and Osaka University, led by Professors Watanabe, Kuratsune, and Kataoka, have been trying to get to the bottom of energy production – or lack thereof – since the early 1990s. In 2016 they published one of the first papers to examine the plasma metabolome in ME/CFS. You can revisit this…

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May 2019, the international accredited conference, Invest in ME Research, opened its doors to presenters from around the globe. The conference, held in the United Kingdom and hosted completely by this nonprofit, aimed to increase research collaboration with the full spectrum of ME/CFS constituents including journalists, researchers, and physicians. After fourteen years of quality presentations,…

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On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day.  The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.

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For decades, no one has known what causes myalgic encephalomyelitis (ME, commonly called ME/CFS). As a result, this debilitating disease has been very difficult to diagnose and even harder to treat. Funded by a major grant from the National Institutes of Health (NIH), Bateman Horne Center is studying the biology of ME/CFS in unprecedented detail.…

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On March 15-16, leading ME/CFS clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The goal of this summit was to grow the collaborative network of disease experts, identify ways to expand their ranks and improve the clinical care of patients with ME/CFS, and accelerate…

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The NIH will host 3 days of meetings focusing on ME/CFS research. The meeting on April 3 is titled, “Thinking the Future: A Workshop for Young Early Career ME/CFS Investigators”.  This is followed on April 4–5 with a meeting titled, “Accelerating Research on ME/CFS”.  The presentations for this meeting will be given by the veteran…

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