Assessment & Management of PASC

Many of the following resources reflect guidance on how to approach the assessment and care management of ME/CFS, which will assist in supporting patients with other post-viral syndromes such as long-COVID. 

• CDC Interim Guidance: Evaluating & Caring for Patients with Post-COVID Conditions
• AAPM&R: Long COVID (PASC) Guidance
• AAPM&R: Assessment & Treatment of Fatigue in PASC
• AAPM&R: Assessment and treatment of cardiovascular complications in PASC
• AAPM&R: Multi-disciplinary collaborative consensus guidance statement on the assessment and treatment of postacute sequelae of SARS-CoV-2 infection (PASC) in children and adolescents

Learning from other post-viral syndromes 

• Mayo Clinic Proceedings: ME/CFS: Essentials of Diagnosis and Management 
• US ME/CFS Clinician Coalition: Testing Recommendations for Suspected ME/CFS
• US ME/CFS Clinician Coalition: ME/CFS Treatment Recommendations
• BHC: Assessing & Managing Aspects of ME/CFS
• Frontiers: Will COVID-19 Lead to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
• Doctors With M.E. Putting it into Practice: What NICE ME/CFS means for GPs 
• Post COVID-19 Fatigue, Post/Long COVID-19 Syndromes & Post-COVID ME/CFS
• Caring for People with Severe ME/CFS (letter to providers)
• Healthcare: Caring for the Patient with Severe or Very Severe Myalgic/Encephalomyelitis/Chronic Fatigue Syndrome

Criteria-Specific Guidance

• Orthostatic Intolerance (basics, symptoms, interventions)
• Assessing Orthostatic Intolerance: 10-Minute NASA Lean Test (provider instructions)
• Mast cell activation syndrome (MCAS): video, slides
• Post-Exertional Malaise (PEM)
  • • Teach Pacing!! 
    • ME/CFS Crash Survial Guidebook
    • Workwell Foundation: PEM Patient Handout
    • Frontiers in Neurology: Characterization of post-exertional malaise in patients with ME/CFS

Short Videos

• Clinical Presentation of Long COVID Subset Similar to ME/CFS (16 min)
• What is ME/CFS? (diagnostic criteria- 6 min)
• What is Orthostatic Intolerance in ME/CFS Part 1 (assessment- 6 min)
• What is Orthostatic Intolerance in ME/CFS Part 2 (management -5 min)
  
• Addressing Orthostatic Intolerance in ME/CFS (13 min)