Living with Orthostatic Intolerance (OI) by Melanie Hoppers, MD If you’ve ever felt like simple, everyday activities drain your energy, you’re not alone. Living with orthostatic intolerance (OI) can turn activities like standing in line, taking a shower, or even...
News & Blog
Living with Orthostatic Intolerance (OI)
The Story Behind “Life with a Low Battery: Living with ME/CFS”
The Story Behind "Life with a Low Battery: Living with ME/CFS" I am thrilled to announce the release of our latest educational video, Life with a Low Battery: Living with ME/CFS. This video was created not just to educate, but to amplify the voices of those...
Exploring the Potential of Low Dose Naltrexone (LDN) for ME/CFS and Beyond
Many people are unfamiliar with the use of low dose naltrexone (LDN) other than as regular dosed naltrexone which is used to support individuals with addiction recovery. However, at much lower doses it can be useful for people with ME/CFS, Long COVID, mast cell...
Severe ME/CFS Community: You Are Seen, Heard and Valued
Dear Community, Although today is designated for remembering and reflecting on those with Severe ME/CFS, please know that you are in my thoughts every day. I have a photograph of a piece of artwork submitted for ME Awareness Day a couple of years ago. It is entitled...
Honoring Our Illness Journey
Honoring Our Illness Journey Today I am going to talk about something important which is honoring our illness journeys. When we talk about honoring our illness journeys what does that mean? Honoring includes 2 things: 1) respect, and 2) esteem. I think these are two...
What is Myalgic Encephalomyelitis Like? A Patient Perspective
What is Myalgic Encephalomyelitis Like? A Patient Perspective A project by Pillow Writers ©2024. The authors consent to the use of material in this publication, in whole or in part, for the purposes of public and medical education. Authored by Pillow Writers (2024)....
Just In Time
This cartoon with audio description was submitted for the awareness reflections video May 2024.
Sigh
Sigh By Lori Harpell 3/25/2024 Feeling like a deflated balloon, Swirling in a dirty gutter... Hazel is confused, Bob is worn out... Bathroom to recliner, Recliner to bathroom... Hours resting with closed eyes, Listening to the quiet sounds outside... A bed bath, A...
Me and my ME
Me and my ME Who is me, or rather who am I, and what is ME? My name is Dr Bear Lawrence, and I’ve enjoyed an interesting life. I’ve worked as a delivery driver in Norway, a helicopter tour pilot in the Caribbean, and a flight instructor in Oregon. In the UK I’ve been...
Reflections on the 2024 Mast Cell Masterminds Conference
Reflections on the 2024 Mast Cell Masterminds Conference By Melanie Hoppers, M.D. Last month, I had the opportunity to attend the 2024 Mast Cell Masterminds Conference in Oregon with my Bateman Horne Center colleagues, Dr. Brayden Yellman and Jennifer Bell, FNP-C....
Living with Orthostatic Intolerance (OI)
Living with Orthostatic Intolerance (OI) by Melanie Hoppers, MD If you’ve ever felt like simple, everyday activities drain your energy, you’re not alone. Living with orthostatic intolerance (OI) can turn activities like standing in line, taking a shower, or even...
The Story Behind “Life with a Low Battery: Living with ME/CFS”
The Story Behind "Life with a Low Battery: Living with ME/CFS" I am thrilled to announce the release of our latest educational video, Life with a Low Battery: Living with ME/CFS. This video was created not just to educate, but to amplify the voices of those...
Exploring the Potential of Low Dose Naltrexone (LDN) for ME/CFS and Beyond
Many people are unfamiliar with the use of low dose naltrexone (LDN) other than as regular dosed naltrexone which is used to support individuals with addiction recovery. However, at much lower doses it can be useful for people with ME/CFS, Long COVID, mast cell...
Severe ME/CFS Community: You Are Seen, Heard and Valued
Dear Community, Although today is designated for remembering and reflecting on those with Severe ME/CFS, please know that you are in my thoughts every day. I have a photograph of a piece of artwork submitted for ME Awareness Day a couple of years ago. It is entitled...
Honoring Our Illness Journey
Honoring Our Illness Journey Today I am going to talk about something important which is honoring our illness journeys. When we talk about honoring our illness journeys what does that mean? Honoring includes 2 things: 1) respect, and 2) esteem. I think these are two...
What is Myalgic Encephalomyelitis Like? A Patient Perspective
What is Myalgic Encephalomyelitis Like? A Patient Perspective A project by Pillow Writers ©2024. The authors consent to the use of material in this publication, in whole or in part, for the purposes of public and medical education. Authored by Pillow Writers (2024)....
Just In Time
This cartoon with audio description was submitted for the awareness reflections video May 2024.
Sigh
Sigh By Lori Harpell 3/25/2024 Feeling like a deflated balloon, Swirling in a dirty gutter... Hazel is confused, Bob is worn out... Bathroom to recliner, Recliner to bathroom... Hours resting with closed eyes, Listening to the quiet sounds outside... A bed bath, A...
Me and my ME
Me and my ME Who is me, or rather who am I, and what is ME? My name is Dr Bear Lawrence, and I’ve enjoyed an interesting life. I’ve worked as a delivery driver in Norway, a helicopter tour pilot in the Caribbean, and a flight instructor in Oregon. In the UK I’ve been...