Understanding the Neuroscience of Pain, Dr. Nelson April 2019
In our April education meeting we were pleased to host Matt Nelson, DPT, an educator, advocate, and expert in handling chronic and complex pain conditions. He described our current neurological understanding of pain, how pain may be decreased by education through physical therapy and, thus improve our ability to cope. What is Pain? When the…
Read MoreRemoving Uncertainty to Advance ME/CFS Research, Dr. Vernon June 2019
In this month’s education meeting we were delighted to hear from Suzanne Vernon, PhD, research director at the Bateman Horne Center. She has raised millions of dollars for ME/CFS research resulting in over 85 published papers. Dr. Vernon presented the two-pronged approach that the Bateman Horne Center is using to accelerate the state of ME/CFS…
Read MoreOngoing Developments at the Bateman Horne Center
BHC as a ME/CFS Center of Excellence A Center of Excellence is a program assembled to supply an exceptionally high concentration of expertise and resources in an area of medicine. The Fatigue Consultation Clinic and OFFER joined forces to establish the Bateman Horne Center, a ME/CFS and Fibromyalgia Center of Excellence. The objective is to…
Read MoreCoping with Chronic Illness with Pema Chödrön
Pema Chödrön is an American Tibetan Buddhist. Pema has led extensive discussions on working with chronic illness, specifically ME/CFS. A generous and anonymous donor has secured permission to share this video clip with our community to assist patients with this helpful coping discussion.
Read MoreService Animals for Mobility Support with Chronic Illness, August 2019 Education Meeting
August’s education meeting featured Kelley Rosequist, owner of Dog Training Elite Utah. She provided information on service dogs and specifically on how service dogs can provide mobility support for those with fibromyalgia, ME/CFS and other chronic illnesses. What Makes a Service Animal? Service animals, by definition, are animals that are trained for specific tasks to…
Read MoreInnovative Research on Metabolomic Biomarkers
The research team at RIKEN and Osaka University, led by Professors Watanabe, Kuratsune, and Kataoka, have been trying to get to the bottom of energy production – or lack thereof – since the early 1990s. In 2016 they published one of the first papers to examine the plasma metabolome in ME/CFS. You can revisit this…
Read MoreYoung Investigators @ BHC
May 2019, the international accredited conference, Invest in ME Research, opened its doors to presenters from around the globe. The conference, held in the United Kingdom and hosted completely by this nonprofit, aimed to increase research collaboration with the full spectrum of ME/CFS constituents including journalists, researchers, and physicians. After fourteen years of quality presentations,…
Read MoreWe See You. You are Not Missing to Us.
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.
Read MoreHealthy Volunteers Help Drive Research Forward
For decades, no one has known what causes myalgic encephalomyelitis (ME, commonly called ME/CFS). As a result, this debilitating disease has been very difficult to diagnose and even harder to treat. Funded by a major grant from the National Institutes of Health (NIH), Bateman Horne Center is studying the biology of ME/CFS in unprecedented detail.…
Read MoreWhat’s Next for the ME/CFS Clinician Coalition?
On March 15-16, leading ME/CFS clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The goal of this summit was to grow the collaborative network of disease experts, identify ways to expand their ranks and improve the clinical care of patients with ME/CFS, and accelerate…
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