For the Missing
I went missing years ago Some don’t even know That I spend most days away, inside And then my illness doesn’t show I can’t show all the pain I feel Or fogginess or dread No one sees my energy gone Or the tears I often shed It’s not that I’m just tired Or need to…
Read More#MillionsMissing 2020 – Virtual Support and Awareness Event
On Tuesday, May 12th at noon, 110 people, reclined, sat and stood gathered around Zoom powered computer screens to commemorate ME/CFS and FM Awareness Day. BHC partnered with Rebecca Cain, #MEAction Utah Representative, to conduct the live virtual #MillionsMissing event. (Link to recording at the bottom of this post.) The SARS-CoV2 pandemic has changed the…
Read MoreBHC Joins #GivingTuesdayNow Campaign
The COVID-19 pandemic has impacted our world in unexpected ways and brought new challenges to the ME/CFS and FM (Myalgic Encephalomyelitis and Fibromyalgia) community of patients and their advocates, researchers, medical providers, and health educators. The Bateman Horne Center (BHC) is among the many health care specialists experiencing these impacts first-hand. With limited or no…
Read MoreVirology 101, Suzanne D. Vernon, PhD
My first virology class was taught by Howard Tenim, PhD, a virologist and 1975 Nobel laureate for the discovery of reverse transcriptase – the enzyme used by retroviruses to turn RNA into DNA. I got hooked and have been fortunate to spend the past 35 years learning and studying how viruses do and don’t make…
Read MoreSupport Strategies for the Holidays
Marybeth Raynes, a licensed marriage and family therapist spoke at our December Education meeting on supports for the holiday season. She demonstrated how people living with pain, exhaustion, and isolation can craft a meaningful inner-self holiday season with guided imagery and plan strategies for an outer-self holiday with others. Each of us are a collection…
Read MoreChronic Illness: Seeking Quality of Life, Panel Discussion
The Bateman Horne Center hosted a panel of four individuals to discuss: Seeking Quality of Life while Living with a Chronic Illness, in the BHC November Education Series. The panel was comprised of four women in different phases of life who experience various illnesses including ME/CFS and FM. Our volunteer panelists spoke about their views…
Read MoreRaising Awareness for ME/CFS in Petaluma, California
Dr. Bateman traveled to Petaluma, California for a ME/CFS benefit concert on October 5, 2019. This benefit concert featuring singer-songwriter, Marian Call, was designed to entertain, inform, and raise awareness for this debilitating disease. Marian Call’s sound is clever and unique, by turns humorous and heartbreaking; the perfect fit for an audience comprised of those…
Read MoreOvercoming Barriers to Access Care, Dr. Bateman
In this month’s education meeting, Lucinda Bateman, MD, presented ways patients and medical providers can overcome barriers to compassionate care. There are four main barriers to compassionate care: ignorance, the nature of the illness, financial constraints, and difficulty visiting the doctor. Barrier One: Ignorance When it comes to helping people with ME/CFS, many medical providers…
Read MoreUnderstanding the Neuroscience of Pain, Dr. Nelson
In our April education meeting we were pleased to host Matt Nelson, DPT, an educator, advocate, and expert in handling chronic and complex pain conditions. He described our current neurological understanding of pain, how pain may be decreased by education through physical therapy and, thus improve our ability to cope. What is Pain? When the…
Read MoreImproving Quality of Life with Chronic Illness, Dr. Sherlock
In this month’s education meeting we were pleased to hear from Elizabeth Sherlock, PhD, a clinical psychologist who joined the Bateman Horne Center in 2018. She moderates support groups for patients and caregivers. Doctor Sherlock has a great deal of experience with ME/CFS. Her son had the illness for 20 years and died at the…
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