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This poem was shared at the ME/CFS and FM Awareness Day Virtual Event on May 11, 2022.


RuthAnn developed ME/CFS and FM in 1988 after contracting a cytomegalovirus liver infection and three rounds of mononucleosis. Prior to becoming sick she processed Revenue Officer’s work and enjoyed playing volleyball, basketball, softball, track, gymnastics, and dancing. Now she enjoys sewing, jigsaw puzzles, bird watching, and anything electronic when her symptoms allow. She lives in Farmington, Utah, with her husband.

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This poem was shared at the ME/CFS and FM Awareness Day Virtual Event on May 11, 2022.

Amy has a Bachelor’s degree in Elementary Education. Prior to getting sick, she lived it up with her two children as an adventurous stay-at-home mom. She led her family on traveling adventures and spent time in nature. Some of her hobbies included running marathons and practicing yoga. She lives in Salem, Utah, with her husband and children.

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Lisa O'Brien, founder of the Utah COVID-19 Long Haulers group, shares the progress advocates are making on behalf of pw Long COVID, ME/CFS, and fibromyalgia. A transcript is available on our blog at: https://batemanhornecenter.org/blog/

May 11, 2022, Bateman Horne Center's ME/CFS and FM Awareness Day event: "Messages of Hope"

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Communicating impaired function can be challenging for people with ME/CFS, FM, OI, and Long COVID. In addition, clinicians often lack the time and tools to fully grasp the extent of impairment. BHC developed a simple questionnaire that helps patients to communicate the frequency, severity, and nature of their activity limitations.

Estimating the number of better (GOOD) versus worse (BAD) days and listing specific examples
communicates the range of function.

Hours of Upright Activity (HUA), or time spent with feet on the floor (sitting with feet on the floor, standing, walking) versus time spent with feet elevated in 24 hours, takes a little thinking but clearly communicates tolerance for upright
activity.

Access the questionnaire at www.batemanhornecenter.org.

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This video is not intended to be a substitute for professional advice, diagnosis, treatment or the medical recommendations of your medical team.

We advise viewers to carefully review and understand the ideas presented and seek the advice of medical providers with any questions you may have as it relates to your patient-specific situation.

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Bateman Horne Center directors discuss the monumental changes in the ME/CFS and FM medical and scientific landscape over the last year.

Panelists include: Dr. Bateman, Dr. Yellman, Dr. Vernon, Tahlia Ruschioni, and Angela Linford.


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This video is not intended to be a substitute for professional advice, diagnosis, treatment or the medical recommendations of your medical team.

We advise viewers to carefully review and understand the ideas presented and seek the advice of medical providers with any questions you may have as it relates to your patient-specific situation.

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May 11, 2021, Bateman Horne Center's ME/CFS and FM Awareness Day event: "Messages of Hope"

Program Timestamps

- Rob Ence, Executive Director, Welcome
- Poem Reading by Amy Cuddeback, “Don’t Mess with the Invisible Beast” (1:18 min)
- Panel Discussion with BHC Leadership (6:40 min)
- Dr. Grach, Mayo Clinic Internal Medicine Resident (34:25 min)
- Lisa O’Brien, Utah Long Haulers Founder and Long COVID Advocate (37:20 min)
- Messages of Hope Video Montage (41:22 min)
- Poem Reading by RuthAnn, “Better Because of M.E.” (49:00 min)
- Good Day Bad Day Asset Release (54:35 min)
- Dr. Bateman Closes and BHC staff and Board hold up their Messages of Hope to the community (58:15 min)

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In honor of ME/CFS and FM Awareness Day members of the community, BHC staff and Board share their messages of hope. The empty shoes represent individuals missing from elements of their pre-illness life.

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Dr. Grach shares her inspiration to focus on ME/CFS, FM, POTS, and Long COVID in her Message of Hope to the patient community.
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Stephanie L. Grach M.D. M.S. is a current third-year resident in the Mayo Clinic School of Graduate Medical Education Internal Medicine residency in Rochester, Minnesota. After training, she will be remaining at Mayo as an attending physician in the Division of General Internal Medicine, where she plans to specialize in the Fibromyalgia, POTS, ME/CFS, Long COVID, and general diagnostic consultative clinics. She is also committed to continuing as a researcher and educator in her fields.

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