As part of the May 11th Messages of Hope Awareness Event, BHC directors engaged in a panel discussion. The following is a transcript of the virtual discussion. Rob Ence: I want to introduce our panel Dr. Lucinda Bateman, Dr. Brayden Yellman, Dr. Suzanne Vernon and...
Awareness Day
Good Day Bad Day Communication Tool
BHC Education Director, Tahlia Ruschioni presents our latest patient asses, Good Day Bad Day Questionnaire, at the May 11th Messages of Hope awareness event. The following is a transcript of her presentation. Tahlia Ruschioni: So I think it goes without saying that...
Dr. Grach Recorded Message of Hope Transcript
As part of the May 11th Messages of Hope Awareness Event, Dr. Grach, May Clinic Internal Medicine Resident recorded her message to be included in the live event moderated by BHC Executive Director, Rob Ence. The following is a transcript of that segment of the...
Long COVID Advocate Shares Progress and Hope
Long Hauler Advocate, Lisa O'Brien shared her message of progress and hope at the BHC Messages of Hope Awareness Event on May 11, 2022. The following is a transcript of her message. Rob Ence: One of the opportunities we have as we go through the challenges...
“Precipice”
We stand on the edge of a precipice and most of the time we keep our eyes trained on the horizon where we can see across to our loved ones to moments of joy happiness contentment. Sometimes we lose our energy and our gaze turns downward into the chasm of despair pain...
Awareness Messages of Hope Video and Slide Show
In honor of ME/CFS and FM Awareness members of the community, BHC staff and Board submitted a picture of their message of hope to fellow community members and empty shoes. The shoes represent individuals missing from elements of their pre-illness life. We created a...
“Reflections at Year 5”
Reflections at year 5… On top of the world, amazing career, a perfect life Until suddenly I wasn’t Why me, why now? But why not me? Unable to stand, to eat, to sleep, to think Where had I gone? An end, and then a foreign uncharted path Time eased some burdens, some...
“Better Because of M.E.”
"Better Because of M.E." (Myalgic Encephalomyelitis) Despite decades of sickness, I’m still me. I’m still of worth; better because of M.E. More loving, empathetic, patient and kind In spite of “losing” some of my mind. Stuck at home but not in the mud, I “get back up”...
“Don’t Irritate the Invisible Beast!”
**Trigger Warning: Chronic Illness** "Don't Irritate the Invisible Beast!" Morning birds awake my unrefreshed insomnia ladened eyes as another day has begun. A glimmer of hope flashes through my mind, what if today the Invisible Beast has left my body; will I...
Share Expression of Hope for Awareness Day
Share Your Message of Hope It’s time to start preparing for ME/CFS and FM Awareness Day! We are holding the 3rd annual Messages of Hope virtual event on May 11th, one day early this year because Dr. Bateman is speaking about ME/CFS at the Long COVID and Fatiguing...
To a Loved One of Someone with a Chronic Illness
To a loved one of someone with a chronic illness: The intention behind this letter is to share the importance of believing and validating your loved one with chronic illness. This may seem simple, and perhaps even obvious, but the power behind these actions can be...
Insights Into My Chronic Illness
Introduction It is hard to know how to support others when their health becomes compromised. It can leave you feeling powerless and unsure of what to do. It is even harder when your loved one is afflicted by an “invisible illness.” An illness where there isn’t a cast...