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What’s Next for the ME/CFS Clinician Coalition?

On March 15-16, leading ME/CFS clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The goal of this summit was to grow the collaborative network of disease experts, identify ways to expand their ranks and improve the clinical care of patients with ME/CFS, and accelerate…

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BHC Participates in NIH-Sponsored ME/CFS Meeting

The NIH will host 3 days of meetings focusing on ME/CFS research. The meeting on April 3 is titled, “Thinking the Future: A Workshop for Young Early Career ME/CFS Investigators”.  This is followed on April 4–5 with a meeting titled, “Accelerating Research on ME/CFS”.  The presentations for this meeting will be given by the veteran…

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Pelvic Health and Chronic Illness

We were pleased to host Dr. Lauren Johnson—Doctor of Physical Therapy and current Director of the Pelvic Physical Therapy and Wellness Clinic in the Salt Lake City, Utah for our March Education Meeting. In this presentation, Dr. Johnson taught about pelvic health, how pelvic symptoms relate to ME/CFS and fibromyalgia symptoms, and how professionals can…

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ME/CFS Clinicians Reconvene in Salt Lake City

Leading U.S. ME/CFS experts will convene for the Second Annual ME/CFS Clinician Summit on March 15-16 in Salt Lake City, Utah. This event is significant because it marks progress and forward momentum for this dedicated group as they tackle the ambitious goal of mainstreaming ME/CFS in the medical community and improving the clinical care of people…

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New Research: Gene Variations in ME/CFS

This is one of the largest ME/CFS epigenetic studies to date and identifies new genetic and epigenetic associations relevant to ME/CFS and useful for the development of new treatments. Samples from a well-defined clinic population of ME/CFS patients were used.

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Genetics and Epigenetics in ME/CFS

This is one of the largest ME/CFS epigenetic studies to date and identifies new genetic and epigenetic associations relevant to ME/CFS and useful for the development of new treatments. Samples from a well-defined clinic population of ME/CFS patients were used.

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Fatigue, Pain and Sexual Health

Navigating intimacy with your partner can be hard enough without the added stressors of ME/CFS and fibromyalgia. We realize that discussing intimacy and sex may be taboo for some, but are nevertheless integral in a holistic view of health for every individual. We urge you to begin to break apart this taboo if it exists…

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BHC Strives for Excellence

As asserted in our mission statement, the Bateman Horne Center envisions a world where patients with ME/CFS and Fibromyalgia (FM) are readily diagnosed, effectively treated, and widely met with empathy and understanding. To achieve this vision, the BHC is progressing toward becoming a center of excellence for ME/CFS and FM, a process that was the…

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NIH Announces Precision Medicine Initiative

Research tends to neglect ME/CFS and FM – until right now. Precision medicine is the emerging scientific idea that medical treatment can and should be maximally efficient by tailoring medicine and healthcare to individual circumstances. Current research studies, however, do not have the size and diversity necessary to produce enough statistical power for individualized treatments.…

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Accelerating ME/CFS Research Through Brain Donation

So often, people with ME/CFS are told to “get over it” since “it’s all in your head.” While this is devastatingly inaccurate, there is an unintended glimmer of truth here – the brain plays an important role in ME/CFS. According to Research Director Suzanne Vernon, “The brain is the command and control center. There is…

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