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Not Without ME

A Research Update On May 3rd, at the monthly BHC Education Meeting, Linda Avey and Suzanne D. Vernon, PhD discussed their cutting-edge research collaboration. Linda described how her team is working together with the Bateman Horne Center to track data, chart experiences and find patient-generated answers using Precise.ly.  Suzanne shared the results of an ME/CFS…

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Guest Post: Student Seeking Feedback from ME/CFS Patients

Brooke Denmark, a student working on her Masters in Social Work, contacted the Bateman Horne Center asking us to share her thesis research questionnaire in order to garner feedback from those living with ME/CFS.  Your participation as a research participants merely involves responding to an online questionnaire. The Bateman Horne Center was not involved in the creation…

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CFS Advisory Committee (CFSAC)

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). Administrative and management support for CFSAC is provided by the HHS Office on Women’s Health in the Office of…

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Parenting a Child with ME/CFS

Parenting is one of life’s greatest challenges, made all the more complex if your child has a chronic illness like ME/CFS. We want you to know that you have options for building a strong network of support to help cope with the challenges of special needs parenting. Written by a mom who walks this road with…

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Biomarkers or Bust

Dr. Vernon explains why for the Bateman Horne Center, the identification of biomarkers is mission-critical… It’s Biomarkers or Bust! __________ Back in 2008 when I was advocating on the Hill and at NIH for greater research dollars for ME/CFS research I was told, “Identify biomarkers and increased research dollars will follow.”  A Catch 22 if…

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$3.28 Million Awarded for ME/CFS Biomarker Study

Bateman Horne Center Leadership are Co-Investigators on this Cutting-Edge Immunogenomic Study to Quantify ME/CFS Moving Toward a Genomic CBC for ME/CFS By Suzanne D Vernon, PhD There are two major barriers to identifying ME/CFS biomarkers: 1) variation in how patients are effected, in terms of symptoms and disease progression and 2) the lack of quantitative tools…

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International ME/CFS & Fibromyalgia Awareness Day – May 12

On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. This date has been designated as an international day for awareness since 1992 and over the years it has evolved into a kick-off event for awareness efforts throughout the rest of May. You can learn more about how it all started…

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What’s the Buzz – January

Each month we scour the Internet and bring you a list of news articles, blogs and research publications we think you’ll find interesting for our What’s the Buzz post. Occasionally, we’ll highlight and summarize a few of them for you, like these:   Ōuraring – Best of Innovations! Each year the latest and greatest gadgetry is on display in…

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A Road Map for Advancing Research

Biomarkers can take the “process of elimination” out of diagnosing ME/CFS and Fibromyalgia.  Biomarkers (short for biological markers) can be objectively measured and tell you something about the individual – whether there is disease present, what type of treatment should be used, etc. Once it is confirmed that a biomarker is useful for diagnosis or…

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