BHC Education Director, Tahlia Ruschioni presents our latest patient asses, Good Day Bad Day Questionnaire, at the May 11th Messages of Hope awareness event. The following is a transcript of her presentation. Tahlia Ruschioni: So I think it goes without saying that...
Orthostatic Intolerance
“Precipice”
We stand on the edge of a precipice and most of the time we keep our eyes trained on the horizon where we can see across to our loved ones to moments of joy happiness contentment. Sometimes we lose our energy and our gaze turns downward into the chasm of despair pain...
To a Loved One of Someone with a Chronic Illness
To a loved one of someone with a chronic illness: The intention behind this letter is to share the importance of believing and validating your loved one with chronic illness. This may seem simple, and perhaps even obvious, but the power behind these actions can be...
Insights Into My Chronic Illness
Introduction It is hard to know how to support others when their health becomes compromised. It can leave you feeling powerless and unsure of what to do. It is even harder when your loved one is afflicted by an “invisible illness.” An illness where there isn’t a cast...
To the ME/CFS & FM Community
My name is Lisa O’Brien, and I am a COVID Long Hauler and the founder of the Utah COVID-19 Long Haulers group, a group I started almost a year ago when no one would take me seriously after being sick for several months. I knew there would be others in my community who...
Education & Outreach 2020 to 2021
When I first started developing patient and provider education on ME/CFS/FM, post-viral illnesses and related conditions, I had no idea just how transformational one year could make in my role. The precedence placed on increasing the medical community's understanding...
Research: Validating Innovative Pathways
It's Research Week at Bateman Horne Center! This means that as part of our Mission Possible giving campaign we fill you in on why research is so important to our organization and how we are using it to improve the lives of those with ME/CFS, fibromyalgia, post-viral...
Wearable Device Research Published in Medical Journal
Turning a Self-Report Questionnaire into a Wearable Device Well-defined and reliable tools are needed for objective diagnosis and to measure clinically relevant outcomes of treatment for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The 2015 Institute...