Before I got ME/CFS I was a women's health nurse practitioner working in a busy practice. I had spent years of education preparing for this dream job: two bachelor's degrees in biology and nursing and two master's degrees in philosophy of science and nursing. I loved...
I was only 11 years old when I got ME/CFS and my life changed forever. Before ME, I was a normal, happy kid. I loved going to school and got straight A’s. I was that crazy kid who couldn’t wait for school to restart after a break. I also loved music. I played the...
After high school, I attended and graduated from a class in machinist training through NASA. I worked for multiple machine shops throughout the years and ultimately became a journeyman machinist, CNC milling/CNC lathe programmer. In the late 1990s/early 2000s I...
I Have Learned... My worth is not in what I can do, it is in who I am That people don’t really think about the fact you are in a wheelchair Except to be on the alert if they might be able to help you The grieving process is a circle I have hard days, but I had hard...
I am proud--and excited--to announce a new and important collaboration between BHC and OMF. We are jointly launching the Medical Education Resource Center (MERC) for multisystem chronic complex diseases (msCCD). Our two respected organizations will bring complementary...
Today, I am honored to announce that Open Medicine Foundation and Bateman Horne Center are partnering to launch a much-needed Medical Education Resource Center for multi-system chronic complex diseases (msCCD) to increase access to knowledgeable healthcare providers....
Researchers at BHC, the University of Utah and Columbia University teamed up to publish our most recent paper, Orthostatic Challenge Causes Distinctive Symptomatic, Hemodynamic and Cognitive Responses in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue...
BHC Education Director, Tahlia Ruschioni presents our latest patient asses, Good Day Bad Day Questionnaire, at the May 11th Messages of Hope awareness event. The following is a transcript of her presentation. Tahlia Ruschioni: So I think it goes without saying that...
We stand on the edge of a precipice and most of the time we keep our eyes trained on the horizon where we can see across to our loved ones to moments of joy happiness contentment. Sometimes we lose our energy and our gaze turns downward into the chasm of despair pain...
To a loved one of someone with a chronic illness: The intention behind this letter is to share the importance of believing and validating your loved one with chronic illness. This may seem simple, and perhaps even obvious, but the power behind these actions can be...
Introduction It is hard to know how to support others when their health becomes compromised. It can leave you feeling powerless and unsure of what to do. It is even harder when your loved one is afflicted by an “invisible illness.” An illness where there isn’t a cast...
My name is Lisa O’Brien, and I am a COVID Long Hauler and the founder of the Utah COVID-19 Long Haulers group, a group I started almost a year ago when no one would take me seriously after being sick for several months. I knew there would be others in my community who...
