On this page, BHC provides resources to help navigate diseases impacting youth by providing guidance for parents, educators, and primary care providers.

Youth Resources

General

Navigating the School System with Chronic Illness 

Description:
School Psychologist, Dr. Valum, and mother of ill teen, Mary Sue Rominger, explain how to navigate the school system to obtain appropriate accommodations. (May 2018)

Presented by: Lane Valum, PhD, School Psychologist; Mary Sue Rominger, BHC Board Chair, and BHC.

Classroom Accommodations for Children with Dysautonomia ME/CFS and Pediatrics 

Description:
A guide providing recommended accommodations for students with dysautonomia.

Presented by: Dysautonomia International

ME/CFS and Pediatrics 

Description:
An in-depth description of ME/CFS in pediatrics and a resource guide for parents.

Presented by: Open Medicine Foundation

Myalgic Encephalomyelitis Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer

Description:
This paper is aimed at medical providers but is also informative for parents of ME/CFS patients. It covers all aspects of the disease from treatment to management of ME/CFS in young people. (2017)

Presented by: Members of the International Writing Group for Pediatric ME/CFS

Voices from the Shadows

Description:
World renown ME/CFS pediatricians, Drs. Rowe and Speight discuss pediatric diagnosis and management in two short videos for medical professionals following the publication of the “Myalgic Encephalomyelitis Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer.” (2017)

Presented by: Peter Rowe, MD, and Nigel Speight, MD

Children and Young Adults with ME/CFS

Description:
This webpage gives a brief overview of management and treatment, impact, emotional and psychological reactions, and educational accommodations.

Presented by: Solve ME/CFS Initiative

Parents

Parents of Children with ME/CFS 

Description:
A panel of parents share their experience and advice for when a child has ME/CFS. (March 2015)

Presented by: BHC

ME/CFS in Children: Fact Sheet for Parents/Guardians

Description:
This fact sheet offers information for parents or guardians that can help them deal with the ways ME/CFS may be affecting their child.

Presented by: Centers for Disease Control

Professionals

ME/CFS in Children: Fact Sheet for Education Professionals

Description:
This fact sheet provides information for education professionals such as teachers, guidance counselors, and other school staff about supporting students with ME/CFS and other chronic conditions in the school environment.

Presented by: Centers for Disease Control

School Nurses Can Improve the Lives of Students with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Description:
The school nurse is likely to encounter one or more students in the various stages of this disease, putting the school nurse in a position to ameliorate the impact of this disease.

Presented by: Sage Journals

Support Groups for Care Partners and Loved Ones