Clinical Care
Overcoming Barriers to Access Care, Dr. Bateman
In this month’s education meeting, Lucinda Bateman, MD, presented ways patients and medical providers can overcome barriers to compassionate care. There are four main barriers to compassionate care: ignorance, the nature of the illness, financial constraints, and difficulty visiting the doctor. Barrier One: Ignorance When it comes to helping people with ME/CFS, many medical providers…
Read MoreWe See You. You are Not Missing to Us.
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.
Read MoreWhat’s Next for the ME/CFS Clinician Coalition?
On March 15-16, leading ME/CFS clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The goal of this summit was to grow the collaborative network of disease experts, identify ways to expand their ranks and improve the clinical care of patients with ME/CFS, and accelerate…
Read MoreBHC Participates in NIH-Sponsored ME/CFS Meeting
The NIH will host 3 days of meetings focusing on ME/CFS research. The meeting on April 3 is titled, “Thinking the Future: A Workshop for Young Early Career ME/CFS Investigators”. This is followed on April 4–5 with a meeting titled, “Accelerating Research on ME/CFS”. The presentations for this meeting will be given by the veteran…
Read MoreME/CFS Clinicians Reconvene in Salt Lake City
Leading U.S. ME/CFS experts will convene for the Second Annual ME/CFS Clinician Summit on March 15-16 in Salt Lake City, Utah. This event is significant because it marks progress and forward momentum for this dedicated group as they tackle the ambitious goal of mainstreaming ME/CFS in the medical community and improving the clinical care of people…
Read MoreBateman Horne Center’s Journey
Dr. Bateman delivers an update on the progress and impact BHC has made in the last five years as a 501 (c)3 nonprofit dedicated to those suffering from ME/CFS and FM. She updates the community on our move towards a multi-specialty clinic and a teaching institution.
Read MoreChildbearing With ME/CFS
“Parenting is a unique opportunity to bring meaning and life satisfaction to someone who is otherwise unable to maintain full time productivity. Parenting with ME/CFS is very possible if everyone is willing to make the adjustments needed. ” Lucinda Bateman MD
Read MoreCFSAC: Current News in ME/CFS Federal Advocacy
ME/CFS advocacy groups play a significant role in educating wider community and government groups about ME/CFS. One such organization, the Chronic Fatigue Syndrome Advisory Committee (CFSAC), operates as an independent group providing formal recommendations on ME/CFS-related issues to The Secretary of Health and Human Services at the federal level of the United States government. CFSAC’s…
Read MoreNIH Announces Precision Medicine Initiative
Research tends to neglect ME/CFS and FM – until right now. Precision medicine is the emerging scientific idea that medical treatment can and should be maximally efficient by tailoring medicine and healthcare to individual circumstances. Current research studies, however, do not have the size and diversity necessary to produce enough statistical power for individualized treatments.…
Read MoreNavigating the School System with Chronic Illness
School can be an exceptionally challenging struggle for students with ME/CFS and FM. This May, in our monthly education meeting, guest speaker Doctor Lane Valum shared crucial strategies for how to work with, instead of against, the school system in getting students the help and resources they need for academic success. IEP and 504 Plans…
Read More