Clinical Care
Childbearing With ME/CFS
“Parenting is a unique opportunity to bring meaning and life satisfaction to someone who is otherwise unable to maintain full time productivity. Parenting with ME/CFS is very possible if everyone is willing to make the adjustments needed. ” Lucinda Bateman MD
Read MoreCFSAC: Current News in ME/CFS Federal Advocacy
ME/CFS advocacy groups play a significant role in educating wider community and government groups about ME/CFS. One such organization, the Chronic Fatigue Syndrome Advisory Committee (CFSAC), operates as an independent group providing formal recommendations on ME/CFS-related issues to The Secretary of Health and Human Services at the federal level of the United States government. CFSAC’s…
Read MoreNIH Announces Precision Medicine Initiative
Research tends to neglect ME/CFS and FM – until right now. Precision medicine is the emerging scientific idea that medical treatment can and should be maximally efficient by tailoring medicine and healthcare to individual circumstances. Current research studies, however, do not have the size and diversity necessary to produce enough statistical power for individualized treatments.…
Read MoreNavigating the School System with Chronic Illness
School can be an exceptionally challenging struggle for students with ME/CFS and FM. This May, in our monthly education meeting, guest speaker Doctor Lane Valum shared crucial strategies for how to work with, instead of against, the school system in getting students the help and resources they need for academic success. IEP and 504 Plans…
Read MoreWe See You. You are Not Missing to Us.
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.
Read MoreA Consensus-Driven ME/CFS Clinician Coalition Takes Shape
On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature of the agenda, the enthusiastic…
Read MoreDr. Bateman Summarizes the ME/CFS Clinicians’ Summit
When Dr. Lucinda Bateman attended an ME/CFS research symposium recently, she had no idea of the challenge she would face. At the conclusion of the symposium, Dr. Ron Davis, a leading researcher in the ME/CFS field, challenged her to hold a similar ME/CFS summit for clinicians. Dr. Bateman isn’t one to back down from any…
Read MoreBHC Program and Research Update
BHC’s mission is to empower patients, advance research, and improve clinical care. What is happening to further those goals? At the November education meeting, Dr. Lucinda Bateman and Dr. Suzanne Vernon shared updates on the programs BHC is developing to ensure that this mission is accomplished. Highlights include development of a patient education program to empower patients, a practitioner education program that will improve clinical care, and implementation of a major research grant to advance the search for biomarkers.
Read MoreME/CFS and Related Illness: Putting It All Together
Understanding how ME/CFS and Fibromyalgia are related to and affected by other illnesses is key in helping patients find relief from symptoms. At the BHC Education Meeting in October, Dr. Nathan Holladay gave a broad view of the key aspects of the various problems that can cause these diseases or make them worse, including infections, immune system issues, and mitochondrial, metabolic, and endocrine dysfunction. Making the connections between these illnesses can help doctors and patients decide on customized treatment methods rather than “one-size-fits-all” treatments.
Read MoreBuilding the Ranks of Skillful and Informed Medical Providers
BHC Strategies for Bringing Doctors up to Speed on ME/CFS and FM presented by Lucinda Bateman, MD, BHC Founder and Medical Director Improving the way medical providers understand, diagnose, and treat ME/CFS and Fibromyalgia is critical to progress and a primary focus of the Bateman Horne Center. At the August 2nd BHC Education Meeting, Dr. Bateman shared her…
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