Clinical Care
CFSAC Education Workgroups Seeking Patient Input
BHC has converted their questions into a simple online questionnaire The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). Administrative and management support for CFSAC is provided by…
Read MoreNASA 10-Minute Lean Test
A Simple Way to Assess Orthostatic Intolerance On June 7, 2017, at the monthly BHC Education Meeting, Pelle Wall, BHC Research Coordinator, reviewed the procedure and shared information about the research underway. Orthostatic intolerance (OI) is an umbrella term used to describe abnormal autonomic nervous system response to orthostatic challenge. Orthostatic hypotension (OH), neurally mediated hypotension (NMH) [or…
Read More4 Tips to Improve Doctor-Patient Communication
Effective doctor-patient communication is critical to building a therapeutic doctor-patient relationship, which is at the heart of delivering high-quality healthcare. When there is open and productive communication, doctors and patients are more effective in exchanging information, patients have greater comprehension of their medical issues, and they are more empowered in decision making about their own…
Read MoreGuest Post: Student Seeking Feedback from ME/CFS Patients
Brooke Denmark, a student working on her Masters in Social Work, contacted the Bateman Horne Center asking us to share her thesis research questionnaire in order to garner feedback from those living with ME/CFS. Your participation as a research participants merely involves responding to an online questionnaire. The Bateman Horne Center was not involved in the creation…
Read MoreA Report of Clinical Progress in 2016
Improved objective diagnosis and the ability to assess treatment outcomes, has made many aspects of MECFS and FM appear before my eyes. I am committed to infusing the medical community with this information to dramatically improve patient diagnosis and treatment. Careful observation of 10 minute NASA Lean test results as part of the CDC multisite…
Read MoreSimple Way to Assess Orthostatic Intolerance
NASA 10 Minute Lean Test* Orthostatic intolerance (OI) is an umbrella term used to describe abnormal autonomic nervous system response to orthostatic challenge. Orthostatic hypotension (OH), neurally mediated hypotension (NMH) [or neurogenic hypotension] and postural orthostatic tachycardia syndrome (PoTS) are terms used to describe variants of this response. The new evidence-based IOM clinical criteria for…
Read MoreFirst-Class Care; First-Class Space
In our spring campaign we set a goal to raise $300,000 that would allow us to move into a larger facility in order to serve more patients, expand education efforts, and increase research participation. Earlier this month, we announced that we had exceeded our goal by more than 260%, raising more than $1.08 million! Well, the turtles have…
Read MoreBHC Screens Forgotten Plague, Hosts Discussion
In late March, the Bateman Horne Center (BHC) held a screening of The Forgotten Plague: a Documentary of Life with M.E. The showing, presented in collaboration with the Westminster College Pre-Professional Health Society, brought together more than 100 people in attendance. Among them were pre-professional health students, patients, care providers and researchers who stayed after the…
Read MoreRemaining Upright: Approach to Orthostatic Intolerance
In this educational seminar, Dr. Cortez defines Orthostatic Intolerance and provides an overview of the anatomy involved. She introduces various clinical lab tests and discusses their role in diagnosis then offers several case illustrations from diagnosis to management. She then ends her talk with several conclusions and take home points. Remaining Upright: Approach to Orthostatic…
Read MoreSurvivor – ME/CFS, FM & Immune Deficiency Edition
‘Ginger’ writes about her journey through sickness, sadness, laughter and joy. She describes herself as an optimistic, stubborn, pretty determined “ginger” battling the ails of getting sick as a little kid with ME/CFS, Fibromyalgia & Immune Deficiency. “I’ve accomplished full remission once, so I know it is possible.” In this blog, she writes about all she’s learned about…
Read More