Fibromyalgia
Life Happens: Sleep, Weight, and Activity in Fibromyalgia
On July 5, Akiko Okifuji, PhD, presented “Life Happens” at the monthly Bateman Horne Center education meeting. Dr. Okifuji is a professor in the Department of Anesthesiology at the University of Utah. She has been actively conducting clinical research in chronic pain field, particularly in the area of fibromyalgia, for the past 20 years. She is…
Read MoreMay 12 ME/CFS FM Awareness Day Celebrates 25 Years
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day and 2017 marks the 25th anniversary. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS. Every year a number of events are held to celebrate and highlight May 12th…
Read MoreLiving With a Partner Who Has ME/CFS or FM
Chronic illness and marriage is a complicated combination. It’s rare to see or hear a healthy spouse’s perspective on their partner’s disease because it is a topic that can be very difficult – as much for the one speaking as for the one hearing it. With an estimated divorce rate as high as 75% among…
Read More4 Tips to Improve Doctor-Patient Communication
Effective doctor-patient communication is critical to building a therapeutic doctor-patient relationship, which is at the heart of delivering high-quality healthcare. When there is open and productive communication, doctors and patients are more effective in exchanging information, patients have greater comprehension of their medical issues, and they are more empowered in decision making about their own…
Read MoreTips for Carepartners
When Someone You Love has ME/CFS or FM There are many diseases that can be considered invisible, but there are substantial differences in how individuals are viewed culturally and socially, depending on their diagnoses. Diabetes, lupus, MS, and others can be invisible illnesses, but few would ever question the limitations of someone with one of…
Read MoreNovel Gene Variants in ME/CFS and Fibromyalgia
Presented by Alan R. Light, PhD. In February 2017, Dr. Light began a new NIH-funded research grant, Novel Gene Variants in ME/CFS and Fibromyalgia. This is a continuation of earlier work which discovered a number of novel variants in both chromosomal and mitochondrial genes that could contribute to the symptoms found in patients. This talk…
Read MoreWhat’s the Buzz – January 2017
Buzz – January 2017: We scoured the Internet to bring you a list of news articles, blogs and research publications we think you’ll find interesting for this month’s What’s the Buzz post. On January 27th, the NIH made two big announcements of federal funding for ME/CFS collaborative research centers and Data Management and Coordinating Centers. While some feel the…
Read MoreRedefining POTS so that Everybody Understands
“Redefining POTS so that everybody understands: a primary care pediatric sports medicine perspective and review” Presented by Dr. Craig Colebey Postural Orthostatic Tachycardia Syndrome or POTS is a disabling disorder, representing “a common pathway” for multiple different causes. The heterogenous nature of its pathophysiology presents a challenge in its diagnosis and treatment. I present…
Read MoreA Report of Research Progress in 2016
Because of the investment of many supporters – donors large and small – the Bateman Horne Center (BHC) has been able to partner with cutting-edge researchers across the globe. BHC works directly with researchers to enroll well-categorized patients into their research, providing samples with material transfer agreements in place so that we continue to learn from…
Read MoreA Report of Clinical Progress in 2016
Improved objective diagnosis and the ability to assess treatment outcomes, has made many aspects of MECFS and FM appear before my eyes. I am committed to infusing the medical community with this information to dramatically improve patient diagnosis and treatment. Careful observation of 10 minute NASA Lean test results as part of the CDC multisite…
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