BHC recognizes the toll and the challenges these diseases present to care partners and family members. On this page, BHC provides resources devoted to help you with knowledge, support, and skills necessary to navigate this journey.
Care Partner and Loved Ones Resources
Believing the Loved One
Description:
Written from a therapist’s perspective, this one-page letter addresses the importance of believing and validating the loved one’s experience with chronic illness.
Insights into My Chronic Illness
Description:
Written from the perspective of an individual with chronic illness to a caregiver, friend, spouse, etc. This letter provides insight into the patient experience and how you can support them.
Living With A Partner Who Has ME/CFS and FM Part 1: Husbands
Description:
Chronic illness and marriage is a complicated combination. In this recorded Education Meeting, the panelists openly and honestly speak about the challenges, hardships, blessings, and lessons learned from their perspective. This is one of our most popular videos. (March 2017)
Presented by: BHC
Living With A Partner Who Has ME/CFS and FM Part 1: Wives
Description:
Chronic illness and marriage is a complicated combination. In this recorded Education Meeting, the panelists openly and honestly speak about the challenges, hardships, blessings, and lessons learned from their perspective. (April 2017)
Presented by: BHC
Caring for People with Myalgic Encephalomyelitis
Description:
#MEAction has crowdsourced this advice from caregivers who care for both adults and children with ME. Gain knowledge, perspective and skills to better equip you to navigate the long, convoluted journey of this disease.
Presented by: #MEAction Network
For Caregivers
Description:
Whether you are a friend, partner, or parent to someone with ME/CFS this is a concise guide to help you on this challenging journey. This link also includes a resource guide for recommended further reading.
Presented by: AMMES
Caregiver Action Network
Description:
This resource is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
Presented by: Caregiver Action Network
Support Groups for Care Partners and Loved Ones
#MEAction Caregivers Support Group
#MEAction FFAME (Family, Friends, and Allies for ME)