On this page, BHC provides tools for effective provider engagement, information on rights in employment and disability claims, and general health and wellness.

Patient Resources

Communicating with your Healthcare Provider

How to Communicate Effectively with your Provider

Description: This document addresses five common hurdles experienced by patients and medical providers. Get our tips and solutions on how to overcome them. We aim to help you get the most out of your time with your medical team. (October 2019)
Presented by: Joyce Ferrone, FNP-BC, BHC Nurse Practitioner

Pre-visit Health Assessment

Description: This is a printable PDF, that you can fill out prior to your medical visit. It serves as a condensed “snapshot” of your current wellness presentation and gives your medical important information that will streamline your visit. (May 2020)
Presented by: Lucinda Bateman, MD, BHC Founder and Medical Director of BHC

Overcoming Barriers to Access Care video 

Description: Dr. Bateman shares her insights, tools and tips for communicating with your medical team about your complex chronic illness.(October 2019)
Presented by: Lucinda Bateman, MD, BHC Founder and Medical Director of BHC

Accommodations

Accommodation and Compliance: Chronic Fatigue Syndrome  

Description: A general guide for work accommodations that can support an employee with ME/CFS and FM.
Presented by: Job Accommodation Network (JAN)

 

Your Employment Rights as an Employee with a Disability

Description: A guidance website outlining coverage and requirements of equal protection under the Americans with Disability Act.
Presented by: US Equal Opportunity Commission

Applying for Disability

How to Navigate Disability with ME/CFS  
Presentation slides  

Description: This recorded webinar features legal and medical experts at they share their advice on applying, appealing, and documenting a case for disability insurance for ME/CFS. (April 2020)
Presented by: Solve ME/CFS and Bateman Horne Center

Disability and ME – CFS 

Description: This is a rich resource guide aimed at both patients and medical providers.
Presented by: Centers for Disease Control (CDC)

The Massachusetts CFIDS/ME & FM Disability Handbook

Description: This information booklet is an extensive guide for those with ME/CFS and FM. Please be advised that this information was last updated on November 2015 and some of the information such as income limitations may have been updated. (November 2015)
Presented by: Massachusetts ME/CFS & FM Association

Quality of Life Resources

Improving Quality of Life with Chronic Illness 

Description: BHC Clinical Psychologist, Dr. Sherlock, walks listeners through the stages of living with a chronic illness, and concludes with a focus on living well with your disease. (September 2019)
Presented by: BHC

The Psychology of Chronic Illness: Making it Normal

Description: A 6-part series reviewing and validating the psychological and social aspects of chronic illness. (March 2020)
Presented by: Timothy Weymann, LCSW, and BHC

Insights for Living Well with a Chronic Illness 

Description: Linda Milne is a member of the BHC community who has navigated living with chronic illness while creating a fulfilling life. She moderates a panel discussion on living a life of quality, while living with ME/CFS and fibromyalgia. (November 2019)
Presented by: Linda Milne, Former BHC Board Member, and BHC

Relationships  

Description: A guidance for navigating relationships with friends and acquaintances, romantic partners, children, and medical providers.
Presented by: American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society

ME/CFS & Fibromyalgia Self-Help 

Description: A rich website with an online supportive program to learn and implement pacing techniques.
Presented by: Bruce Campbell, PhD

General Resources

ME/CFS and FM Treatment Advice  
Description: This guide is intended to help patients explore treatment and management ideas with their healthcare team. (February 2016)
Presented by: BHC

Introduction to PEM (Post Exertional Malaise)  

Description: This introduction to PEM provides insight into the debilitating nature of ME/CFS. (April 2020)
Presented by: Norwegian ME Association – Rogaland County with professional support from psychologist Ketil Jakobsen and pediatric neurologist Kristian Sommerfelt.

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness  

Description: Dr. Bateman and her co-committee members propose new diagnostic criteria that can be used in the real world by medical professionals so that patients can be diagnosed and receive much-needed treatment. This link provides free access to the full report, report brief, ME/CFS Clinicians Guide, Key Facts, Report Guide for Clinicians. (2015)
Presented by: The National Academies of Sciences, Engineering, and Medicine

Primer for Clinical Practitioners  

Description: Provides information necessary for medical providers to understand, diagnose, and manage the symptoms of ME/CFS. (2014)
Presented by: IACFSME (International Association for CFS and ME)

Centers for Disease Control ME/CFS  

Description: Resources and information developed by the CDC.
Presented by: CDC

Films

“Left Out”: An ME/CFS Movie of Commitment, Hope and Despair – Health Rising  

Description: “Left Out” follows the ME/CFS community in Norway as they participate in and await the results of the Rituximab trial. (January 2020)
Presented by: Jonathan Borge Lie, UpNorth Film

Unrest  

Description: Jennifer Brea is about to marry the love of her life when she is struck down by a fever that leaves her bedridden. When doctors tell her “it’s all in her head,” she turns her camera on herself and her community as she looks for answers and fights for a cure. (2017)
Presented by: Jennifer Brea and Shella Films

Forgotten Plague  

Description: A journalist afflicted with ME/CFS embarks on a quest to find out why the medical system has neglected his disease and left millions sidelined from life. (2015)
Presented by: Ryan Prior