BHC is fortunate to have a professional and dedicated volunteer Board of Directors who are the stewards of the efforts and talents of those who built and sustain this organization and are responsible to represent the needs and values of the BHC Community. On this page, BHC provides the biographical sketches of its board leadership and directors.

Mary Sue Rominger

Mary Sue Rominger

Chair

Mary Sue Rominger, BS, is a patient advocate and chair on the BHC Board and formerly worked in the chemical, energy, power, and biotechnology industries.
Rominger completed a BS degree in chemical engineering at Colorado State University. She started volunteering for BHC in 2014 with a focus on building awareness on youth impacted by ME/CFS and POTS and has served as BHC Board Chair since 2017.

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Rominger retired from her professional career when her 14-year-old child become very ill and debilitated. After consultations with many doctors across the nation, no real improvement until her child was diagnosed and treated for ME/CFS and POTS by Dr. Bateman. That started a slow and steady improvement in her child’s health. Rominger determined to help with this devastating illness and, in appreciation of Dr. Bateman, helped BHC host a provider and a patient conference and later joined the BHC Board of Directors. Along with her board duties, she continues as a volunteer helping produce events, including live-streamed education meetings and other content for the BHC YouTube channel.

Rominger is passionate about all aspects of helping those impacted with ME/CFS and FM. As chair, she is guided by BHC’s mission to improve the lives of patients everywhere, not only with the work of BHC’s clinical and research efforts, but through education for patients and medical providers as well.

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Ted Kaly

Ted Kaly

Vice Chair

Ted Kaly is a patient advocate and vice chair on the BHC Board and former electrical engineer, sales, and marketing management entrepreneur. He became the founding chair of the OFFER (Organization for Fatigue and Fibromyalgia Education and Research) board in 2001, the non-profit organization pre-dating BHC. Kaly was a leader in the merger of OFFER and Dr. Bateman’s private medical practice, Fatigue Consultation Clinic (FCC), into the non-profit 501(c)3 organization the Bateman Horne Center of Excellence (BHC) in 2015 and oversees board member recruitment.

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Kaly and his family moved to Utah in 1980 to start an independent manufacturer’s representative firm. He retired in 1999. His long-standing commitment to BHC is fueled by the catastrophic, debilitating change that one of his children has gone through suffering with ME/CFS for over 20 years. His son was working on his PhD when he became ill with ME/CFS and was unable to complete his studies and fulfill his lifelong goal of being a college professor. It is impossible for Kaly to describe how debilitating this illness can be. He is committed to BHC’s work of raising awareness at all levels, providing support and treatment options for patients, and conducting research toward diagnosis and treatment for ME/CFS and FM. Most of all, Kaly wants to help BHC provide hope for those afflicted with this debilitating, currently “incurable” illness.

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Angela Linford

Angela Linford

Secretary

Angela Linford, BS, is a patient advocate and secretary on the BHC Board and former public relations professional with the Utah Department of Transportation and a Salt Lake City based public relations firm. She completed a BS degree in communication from the University of Utah. She began volunteering for OFFER (Organization for Fatigue and Fibromyalgia Education and Research) in 2007 and joined the board in September 2011. Linford currently manages the communications functions for BHC.

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Linford grew up in Salt Lake valley and enjoyed an active lifestyle until suddenly becoming ill with ME/CFS in January 2004 at age 25. She enjoys being able to contribute to BHC’s mission as her health permits. Prior to her illness, Linford was the role public information manager for high profile transportation projects such as the Legacy Parkway and Utah’s first reversible lane system.

Linford’s first meeting as a board member included the brainstorming session that led to the vision of a medical center of excellence for individuals with ME/CFS and FM. She feels privileged to have participated in the process of bringing that dream to reality in the form of BHC.

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Veldon Sorensen

Veldon Sorensen

Treasurer

Veldon Sorensen, BS, MS, PhD, is a patient and research advocate and treasurer on the BHC Board and former crop scientist involved in agricultural research and management for Bayer AG in Germany and Canada. He completed a BS and MS degree and received a PhD from Michigan State University. Dr. Sorensen has volunteered on the board for BHC for several years and helped transition BHC into its current non-profit and business model. He contributes critical thinking and oversight to BHC’s strategic direction and financial sustainability.

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Dr. Sorensen commitment to BHC is primarily in support of his spouse, Diane, who lives with fibromyalgia and is a dedicated volunteer for patient support and education herself. She has inspired his interest in service and helped shaped his goal to broaden the general understanding of the issues that families and spouses face considering these conditions. Dr. Sorensen also supports research that covers a multi-faceted approach to living and thriving with the conditions of ME/CFS and FM.

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Peggy Rosati Allen

Peggy Rosati Allen

MS, CNM, WHNP

Peggy Rosati Allen, MS, CNM, WHNP is a patient advocate and medical educator on the BHC Board and an assistant clinical professor at the University of Utah College of Nursing.  She completed a BS degree in nursing from the University of Wyoming, an MS degree and certification as a women’s health nurse practitioner from UC San Francisco, and post-master’s certificate in nurse-midwifery from the University of Utah. Allen has led educational efforts and published articles and materials with a focus on the impact of ME/CFS on youth and women during childbearing years.

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Allen is a California native, married, and has 3 children, one of whom became suddenly ill with ME/CFS at the age of 12. She has tremendous empathy for the suffering and challenges faced by individuals and families affected by ME/CFS and is keenly aware of the misunderstandings about ME/CFS among lay and healthcare communities. Allen is passionate about trying to do her part to educate others about the realities of ME/CFS, with the ultimate hope of increasing societal support, compassion, and equity and access to quality health care for affected individuals.

Allen’s volunteer efforts included building awareness of the needs of the ME/CFS pediatric population, moderating panels of youth living with ME/CFS and FM, providing testimony on the educational challenges of youth with ME/CFS at an NIH/CFSAC conference, and serving on BHC’s Board. Her article, “Chronic Fatigue Syndrome: Implications for Women and Their Health Care Providers During the Childbearing Years”, was featured in the 2008 Journal of Midwifery and Women’s Health and received an award for its contribution to clinical practice.

After many years of direct patient care and clinical teaching in midwifery, Allen now works as a faculty practice APRN care manager and continues the role of a parent helping her daughter with ME/CFS navigate young adulthood. She is aware of a whole new set of challenges that face affected individuals and their families in this phase of life and illness together. Allen hopes that her
involvement with the BHC Board can help create change desperately needed to improve the lives of those profoundly affected by this illness.

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Akiko Okifuji

Akiko Okifuji

Professor of Anesthesiology, University of Utah; Licensed Psychologist, University of Utah Pain Management Center

Akiko Okifuji, BS, PhD, is a healthcare provider and research advocate on the BHC Board and is a professor in the department of anesthesiology at the University of Utah. She completed a BS degree in psychology at the State University of New York at Stony Brook and a PhD degree in clinical psychology from the University of Binghamton in New York. Dr. Okifuji is a practicing clinical psychologist specializing in pain management and provides behavioral medicine services at the University of Utah Pain Management Center as a member of an interdisciplinary pain care team.

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Dr. Okifuji completed a clinical internship and post-doctoral fellowship at the University of Pittsburgh and was an assistant professor of anesthesiology at the University of Washington in Seattle until 2001 before joining the Pain Research Center at the University of Utah.

In the past 20 years, Dr. Okifuji has been active in conducting clinical research in pain medicine, particularly around fibromyalgia. She is a recipient of multiple grant awards from the National Institute of Health and has published extensively on the topic of interdisciplinary and psycho-social aspects of pain medicine. Her current research interests include the efficacy of the multimodal rehabilitative approaches for fibromyalgia, the impact of sleep and obesity on pain, and psychological and medical factors contributing to the pain modulatory system.

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Sharon Hunter Donnelly

Sharon Hunter Donnelly

Sharon Hunter Donnelly, BS, MS is a patient advocate and community educator on the BHC Board and former director of health information technology and senior vice president of strategy and development for Comagine (HealthInsight) Utah. She completed a BS and MS degree in statistics from the University of Tennessee. Donnelly specializes in clinical practice transformation, adoption of health information technology, and the application of data to improve patient care and payment and delivery systems.

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Donnelly grew up outside of Boston and eventually moved to Utah in 1996 to begin her career with HealthInsight Utah as a healthcare analyst. She had several leadership roles through 2020 including the management of projects and grant proposals for business development which included services to outpatient practices and national consulting services. Key HealthInsight contributions included work with the Office of the National Coordinator for Health Information Technology Beacon Community Project and Regional Extension Center programs and tests of using the ECHO™ model in improvement initiatives.

In 2014, after several years of struggling with unexplained pain and fatigue, Donnelly was diagnosed with fibromyalgia at the Bateman Horne Center. Having the correct diagnosis led to treatments that enabled much improved symptom control and in turn a much greater ability to function. She strongly supports BHC’s mission to close the diagnosis gaps and increase knowledge of effective treatment options in ME/CFS and FM. Donnelly has four grown children and two grandchildren.

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David B. Mason

David B. Mason

David B. Mason, BS, MBA is a patient advocate on the BHC Board and former hospital administrator retiring in 2009 as the Corp Regional Compliance/Privacy Officer for IASIS Healthcare. He completed a dual BS degree in journalism and biology and continued his graduate studies at Utah State University and Brigham Young University. Mason serves as an active volunteer Chaplain at Primary Children’s Hospital and is a member of the Chaplain Leadership Team. He also oversees and assists with HIPAA education and compliance for the BHC board and staff members.

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Mason was the youngest of four children and grew up in West Capitol area of Salt Lake City. He was active in sports at West High School and served as the Sports Editor for the school newspaper a tradition he carried to the University of Utah becoming the Sports Editor for the Daily Utah Chronicle. His hospital administration career engaged him at every major hospital and medical center in Salt Lake and Davis Counties.

Dave has been married to Bonnie Harrington for 43 years. They have six children (4 boys and 2 girls) and eight grandchildren. He was very active in youth activities, coaching little league football, Junior Jazz basketball, and serving in the Boy Scout program. He is an avid reader and loves the History Channel and Science Fiction books and movies.

In 2001, Mason was diagnosed with mononucleosis. After struggling to recover for a year, he went to see Dr. Bateman and was diagnosed with CFS. Mason was able to maintain a career until 2009, when he contracted pneumonia twice and had back surgery. The ensuing disability ended his career and after being bed-ridden for the better part of three years, he was able to manage the disease and become somewhat productive. Mason had gone from an active basketball player, biker, and hiker to where he tries to manage walking up to one mile per day.

Mason hopes his BHC board service can help increase understanding of this disease and be of service to those who are struggling with it.

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Jessica Turner

Jessica Turner

Jessica Turner is a patient advocate on the BHC Board who dreamed of becoming a physical therapist, having a family, and living an active lifestyle when she began a grueling four-year search for answers while fighting debilitating headaches, fatigue, and post exertional malaise and was finally diagnosed with ME/CFS by Dr. Lucinda Bateman in 2005. Turner is a tireless advocate for patient and family issues as well as better provider access to those with ME/CFS and FM. She participates on the governance committee for BHC that provides policy guidance and direction.

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Turner is a native of Salt Lake City, Utah. She and her husband, Jay – also a dedicated support and advocate, are both committed to helping BHC fulfill its mission. They have built a successful marriage and family around (and despite) the devastating effects of her ME/CFS. They have three wonderful children who are their joy in life. Turner is a vital and strong representative voice of the patient population as a board member and remains truly committed to improve the lives of people living with the harsh reality of FM and ME/CFS.

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