The emergence of SARS-CoV-2, the virus responsible for COVID-19, swept across the globe with an unparalleled speed and severity. As a researcher dedicated to understanding how viral infections lead to chronic illness, I knew this pandemic would have far-reaching...
ME/CFS
Practical Tools for Managing ME/CFS: Insights from Amy Mooney, MS OTR/L and Caregiver
Practical Tools for Managing ME/CFS: Insights from Amy Mooney, MS OTR/L and caregiver Caring for a teenager with severe ME/CFS has been a life-changing journey for me, both as a mother and as an occupational therapist. The complexities of this condition—where energy...
Reflections on the 2024 Mast Cell Masterminds Conference
Reflections on the 2024 Mast Cell Masterminds Conference By Melanie Hoppers, M.D. Last month, I had the opportunity to attend the 2024 Mast Cell Masterminds Conference in Oregon with my Bateman Horne Center colleagues, Dr. Brayden Yellman and Jennifer Bell, FNP-C....
Living with Orthostatic Intolerance (OI)
Living with Orthostatic Intolerance (OI) by Melanie Hoppers, MD If you’ve ever felt like simple, everyday activities drain your energy, you’re not alone. Living with orthostatic intolerance (OI) can turn activities like standing in line, taking a shower, or even...
The Story Behind “Life with a Low Battery: Living with ME/CFS”
The Story Behind "Life with a Low Battery: Living with ME/CFS" I am thrilled to announce the release of our latest educational video, Life with a Low Battery: Living with ME/CFS. This video was created not just to educate, but to amplify the voices of those...
Honoring Our Illness Journey
Honoring Our Illness Journey Today I am going to talk about something important which is honoring our illness journeys. When we talk about honoring our illness journeys what does that mean? Honoring includes 2 things: 1) respect, and 2) esteem. I think these are two...
Sigh
Sigh By Lori Harpell 3/25/2024 Feeling like a deflated balloon, Swirling in a dirty gutter... Hazel is confused, Bob is worn out... Bathroom to recliner, Recliner to bathroom... Hours resting with closed eyes, Listening to the quiet sounds outside... A bed bath, A...
Me and my ME
Me and my ME Who is me, or rather who am I, and what is ME? My name is Dr Bear Lawrence, and I’ve enjoyed an interesting life. I’ve worked as a delivery driver in Norway, a helicopter tour pilot in the Caribbean, and a flight instructor in Oregon. In the UK I’ve been...
Stuck with ME
Stuck with ME Let me tell you a little bit about ME I am a monstrous intruder I am your worst nightmare You do not want an invasion from ME I break in through the tiniest cracks anyway There is no avoiding ME I creep in when you least expect ME I am a perpetual thief...
Persephone Enters the Underworld
Persephone Enters the Underworld/Thanksgiving Table 11/26/23 Grieve for me Mother because I am gone. No, I was not stolen or taken. I did not fall, Slip. Truthfully I cannot tell you how I got within the winding corridors of death. But here I am. No, Mother I will not...
Slowly Dying
**Trigger Warning. This poem may be difficult to read for some individuals. Please take care. Here is a link to BHC's Crisis Resources page.** Slowly Dying I'm on earth, and I no longer feel like I'm living; instead, I'm slowly dying. It's like being in a...
ME/CFS Inpatient Study Findings – BHC’s Statement
Since the recent release of the NIH intramural publication detailing findings from the ME/CFS Inpatient Study, there has been a whirlwind of impassioned commentary. While we harbor mixed sentiments about the paper, we've committed professionally to maintaining an open...