ME/CFS
Raising Awareness for ME/CFS in Petaluma, California
Dr. Bateman traveled to Petaluma, California for a ME/CFS benefit concert on October 5, 2019. This benefit concert featuring singer-songwriter, Marian Call, was designed to entertain, inform, and raise awareness for this debilitating disease. Marian Call’s sound is clever and unique, by turns humorous and heartbreaking; the perfect fit for an audience comprised of those…
Read MoreOvercoming Barriers to Access Care, Dr. Bateman
In this month’s education meeting, Lucinda Bateman, MD, presented ways patients and medical providers can overcome barriers to compassionate care. There are four main barriers to compassionate care: ignorance, the nature of the illness, financial constraints, and difficulty visiting the doctor. Barrier One: Ignorance When it comes to helping people with ME/CFS, many medical providers…
Read MoreImproving Quality of Life with Chronic Illness, Dr. Sherlock
In this month’s education meeting we were pleased to hear from Elizabeth Sherlock, PhD, a clinical psychologist who joined the Bateman Horne Center in 2018. She moderates support groups for patients and caregivers. Doctor Sherlock has a great deal of experience with ME/CFS. Her son had the illness for 20 years and died at the…
Read MoreOngoing Developments at the Bateman Horne Center
BHC as a ME/CFS Center of Excellence A Center of Excellence is a program assembled to supply an exceptionally high concentration of expertise and resources in an area of medicine. The Fatigue Consultation Clinic and OFFER joined forces to establish the Bateman Horne Center, a ME/CFS and Fibromyalgia Center of Excellence. The objective is to…
Read MoreCoping with Chronic Illness with Pema Chödrön
Pema Chödrön is an American Tibetan Buddhist. Pema has led extensive discussions on working with chronic illness, specifically ME/CFS. A generous and anonymous donor has secured permission to share this video clip with our community to assist patients with this helpful coping discussion.
Read MoreService Animals for Mobility Support with Chronic Illness
August’s education meeting featured Kelley Rosequist, owner of Dog Training Elite Utah. She provided information on service dogs and specifically on how service dogs can provide mobility support for those with fibromyalgia, ME/CFS and other chronic illnesses. What Makes a Service Animal? Service animals, by definition, are animals that are trained for specific tasks to…
Read MoreRemoving Uncertainty to Advance ME/CFS Research, Dr. Vernon
In this month’s education meeting we were delighted to hear from Suzanne Vernon, PhD, research director at the Bateman Horne Center. She has raised millions of dollars for ME/CFS research resulting in over 85 published papers. Dr. Vernon presented the two-pronged approach that the Bateman Horne Center is using to accelerate the state of ME/CFS…
Read MoreInnovative Research on Metabolomic Biomarkers
The research team at RIKEN and Osaka University, led by Professors Watanabe, Kuratsune, and Kataoka, have been trying to get to the bottom of energy production – or lack thereof – since the early 1990s. In 2016 they published one of the first papers to examine the plasma metabolome in ME/CFS. You can revisit this…
Read MoreYoung Investigators @ BHC
May 2019, the international accredited conference, Invest in ME Research, opened its doors to presenters from around the globe. The conference, held in the United Kingdom and hosted completely by this nonprofit, aimed to increase research collaboration with the full spectrum of ME/CFS constituents including journalists, researchers, and physicians. After fourteen years of quality presentations,…
Read MoreWe See You. You are Not Missing to Us.
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.
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