Canada Johansen

I went missing years ago Some don’t even know That I spend most days away, inside And then my illness doesn’t show I can’t show all the pain I feel Or fogginess or dread No one sees my energy gone Or the tears I often shed It’s not that I’m just tired Or need to…

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#MillionsMissing Logo

On Tuesday, May 12th at noon, 110 people, reclined, sat and stood gathered around Zoom powered computer screens to commemorate ME/CFS and FM Awareness Day. BHC partnered with Rebecca Cain, #MEAction Utah Representative, to conduct the live virtual #MillionsMissing event. (Link to recording at the bottom of this post.) The SARS-CoV2 pandemic has changed the…

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Dr. Bateman traveled to Petaluma, California for a ME/CFS benefit concert on October 5, 2019. This benefit concert featuring singer-songwriter, Marian Call, was designed to entertain, inform, and raise awareness for this debilitating disease. Marian Call’s sound is clever and unique, by turns humorous and heartbreaking; the perfect fit for an audience comprised of those…

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Lucinda Bateman, MD

In this month’s education meeting, Lucinda Bateman, MD, presented ways patients and medical providers can overcome barriers to compassionate care. There are four main barriers to compassionate care: ignorance, the nature of the illness, financial constraints, and difficulty visiting the doctor. Barrier One: Ignorance When it comes to helping people with ME/CFS, many medical providers…

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Elizabeth Sherlock, PhD

In this month’s education meeting we were pleased to hear from Elizabeth Sherlock, PhD, a clinical psychologist who joined the Bateman Horne Center in 2018. She moderates support groups for patients and caregivers. Doctor Sherlock has a great deal of experience with ME/CFS. Her son had the illness for 20 years and died at the…

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Drs Bateman and Vernon Evolution of BHC

BHC as a ME/CFS Center of Excellence A Center of Excellence is a program assembled to supply an exceptionally high concentration of expertise and resources in an area of medicine. The Fatigue Consultation Clinic and OFFER joined forces to establish the Bateman Horne Center, a ME/CFS and Fibromyalgia Center of Excellence. The objective is to…

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Pema Chödrön is an American Tibetan Buddhist. Pema has led extensive discussions on working with chronic illness, specifically ME/CFS.  A generous and anonymous donor has secured permission to share this video clip with our community to assist patients with this helpful coping discussion.

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Kelly Rosequist, Service Animals for Mobility Support image

August’s education meeting featured Kelley Rosequist, owner of Dog Training Elite Utah. She provided information on service dogs and specifically on how service dogs can provide mobility support for those with fibromyalgia, ME/CFS and other chronic illnesses. What Makes a Service Animal? Service animals, by definition, are animals that are trained for specific tasks to…

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Dr. Vernon Removing Uncertainty to Advance ME/CFS

In this month’s education meeting we were delighted to hear from Suzanne Vernon, PhD, research director at the Bateman Horne Center. She has raised millions of dollars for ME/CFS research resulting in over 85 published papers. Dr. Vernon presented the two-pronged approach that the Bateman Horne Center is using to accelerate the state of ME/CFS…

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Suzanne D. Vernon, PhD, Research Director

The research team at RIKEN and Osaka University, led by Professors Watanabe, Kuratsune, and Kataoka, have been trying to get to the bottom of energy production – or lack thereof – since the early 1990s. In 2016 they published one of the first papers to examine the plasma metabolome in ME/CFS. You can revisit this…

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