Appendix 2: When someone you care about experiences a crash, it can be scary and leave you feeling helpless. This resource aims to equip you with knowledge and insights from caregiver-to-caregiver on ways to support and alleviate the suffering of the person experiencing the crash (referenced below as the patient).
Chapter 11: While living with ME/CFS, it is vital to learn the art of preventing and minimizing PEM and a subsequent crash. While not in a crash state, familiarize yourself with resources that can assist you in conserving energy and apply these following concepts to your everyday life.
This week our paper about possible causes of brain fog in ME/CFS and Long COVID was published in Frontiers of Neuroscience. This study included a large group of ME/CFS patients, Long COVID patients, and matched healthy controls. We hypothesized that cognitive...
Occupational and physical therapists have traditionally been trained from a rehabilitation perspective to treat a wide or diverse range of medical conditions. Many principles of rehabilitation can be applied to various spectrums of chronic health conditions....
Sallie Rediske and Tahlia Ruschioni presented the new medical education series at the Reflections of ME/CFS, FM, and Long COVID awareness event on May 9th. We invited Sallie to write this guest post to accompany her presentation. Click here to view the video...
Chapter 14: Traveling, while wonderful, can put you at risk for a crash. The increased energy expenditure physically, cognitively, and emotionally can use up your energy reserves more quickly than you would think. Here are some tips that may help you have less chance of crashing and use your energy more slowly.
Chapter 13: First and foremost, KEEP IT SIMPLE! It is not your job to diagnose what is wrong. If you or your caregiver think you should go to urgent care or the ER, then you should probably go.
Chapter 12: When the body first becomes sick, it can be mentally, emotionally, and physically draining to the affected individual as the body struggles to regulate itself. This process can be incredibly overwhelming as the patient tries to find the vocabulary to describe what is happening to them.
Chapter 11: While living with ME/CFS, it is vital to learn the art of preventing and minimizing PEM and a subsequent crash. While not in a crash state, familiarize yourself with resources that can assist you in conserving energy and apply these following concepts to your everyday life.
Chapter 10: When living with ME/CFS, it may be tempting to let your mind fixate on what caused the illness or a crash. You may even feel yourself slipping into a state of self-blame. Simply put, this is not helpful to your crash recovery and is not supportive when living with the disease.
Chapter 9: Activities of daily living, known as ADLs, are tasks that involve self-care. Common ADLs include personal hygiene, bathing, toileting, dressing, eating, sleeping, and moving around in our environments. These tasks are often carried out without awareness of the energy demand that can be placed on our bodies while performing the task.
Bateman Horne Center is honored to have a guest message by Janet Dafoe. She is a caregiver for her very severe ME/CFS son, advocate and fundraiser for the End ME/CFS Project at Open Medicine Foundation and CFSRC at Stanford. Follow her on Twitter at @JanetDafoe. Ron...
