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ME/CFS

Novel Gene Variants in ME/CFS and Fibromyalgia

Presented by Alan R. Light, PhD. In February 2017, Dr. Light began a new NIH-funded research grant, Novel Gene Variants in ME/CFS and Fibromyalgia. This is a continuation of earlier work which discovered a number of novel variants in both chromosomal and mitochondrial genes that could contribute to the symptoms found in patients. This talk…

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What’s the Buzz – January 2017

Buzz – January 2017: We scoured the Internet to bring you a list of news articles, blogs and research publications we think you’ll find interesting for this month’s What’s the Buzz post.   On January 27th, the NIH made two big announcements of federal funding for ME/CFS collaborative research centers and Data Management and Coordinating Centers. While some feel the…

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Standardizing Measurement of ME/CFS Core Symptoms

Dr. Suzanne D. Vernon, BHC research liaison, explains how the IOM report defining the core symptoms of ME/CFS also define the BHC research roadmap. ________ At the October 2012 CFS Advisory Committee meeting Dr. Sandra Kweder, Deputy Director of the Office of New Drugs at the FDA stated, “When there is confusion, lack of consensus…

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Dr. Bateman Determined to Power-Up in 2017

Dr. Bateman, BHC founder and medical director, reflects on the progress in 2016 and plans to power-up her dedication to patients. __________ The “wear wild socks” year was amazing, marked by the quick-paced steps of the turtle-carrying-hares toward illness recognition and biomarker discovery.  (Read how it all began HERE.)  The recipe for this success has been…

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BHC Partners with UNREST Premiere at Sundance

After years of work and hundreds of hours of footage, Jen Brea’s documentary, now entitled Unrest, recently debuted at the Sundance Resort as part of the Sundance Film Festival. The Bateman Horne Center (BHC) was honored to partner with Ms. Brea and Unrest on one of several screening events. On Sunday, January 22nd, BHC helped fill a theatre with…

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CFS Advisory Committee (CFSAC)

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). Administrative and management support for CFSAC is provided by the HHS Office on Women’s Health in the Office of…

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Redefining POTS so that Everybody Understands

“Redefining POTS so that everybody understands: a primary care pediatric sports medicine perspective and review” Presented by Dr. Craig Colebey   Postural Orthostatic Tachycardia Syndrome or POTS is a disabling disorder, representing “a common pathway” for multiple different causes.  The heterogenous nature of its pathophysiology presents a challenge in its diagnosis and treatment.  I present…

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A Report of Research Progress in 2016

Because of the investment of many supporters – donors large and small – the Bateman Horne Center (BHC) has been able to partner with cutting-edge researchers across the globe. BHC works directly with researchers to enroll well-categorized patients into their research, providing samples with material transfer agreements in place so that we continue to learn from…

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A Report of Clinical Progress in 2016

Improved objective diagnosis and the ability to assess treatment outcomes, has made many aspects of MECFS and FM appear before my eyes. I am committed to infusing the medical community with this information to dramatically improve patient diagnosis and treatment. Careful observation of 10 minute NASA Lean test results as part of the CDC multisite…

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Holiday Survival Guide

  Living with ME/CFS and FM changes most everything, including how we celebrate the holidays. Perhaps one of the greatest gifts you can give yourself, or a loved one, is a ‘free pass’ on the guilt you may be tempted take on when you are unable to do it all. We all want a happy…

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