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Nutrition and Hydration

Nutrition and Hydration

Chapter 8: The following are examples of quick, easy, nutrient-rich foods and hydration options that can be integrated into everyday living with ME/CFS, orthostatic intolerance, and during a crash. In living with ME/CFS you may experience fluctuating motility, stomach and body sensitivities, nausea, etc. Be careful when introducing any new items into your system. Start slow, work with your medical care team while being mindful of any known intolerances or mast cell triggering substances.

Communication – Meeting Your Critical Needs

Communication – Meeting Your Critical Needs

Chapter 5: Communication – Meeting Your Critical Needs. During a crash, it can be difficult to communicate with others. This section references downloadable and printable communication cards to help you communicate your needs. Consider keeping these in your bedside Crash Care Kit or on your electronic device to point/show your caregiver, loved one, or support services.

22 Years of Illness: A Perspective on Gratitude

22 Years of Illness: A Perspective on Gratitude

If you are reading this, congratulations!  You have survived another day.  And that’s something when you’re living with or supporting someone with diseases like myalgic encephalomyelitis, fibromyalgia, long Covid, POTS, mast cell activation syndrome, and similarly complicated fatiguing illnesses. (Even listing them is exhausting!)

Nutrition and Hydration

Nutrition and Hydration

Chapter 8: The following are examples of quick, easy, nutrient-rich foods and hydration options that can be integrated into everyday living with ME/CFS, orthostatic intolerance, and during a crash. In living with ME/CFS you may experience fluctuating motility, stomach and body sensitivities, nausea, etc. Be careful when introducing any new items into your system. Start slow, work with your medical care team while being mindful of any known intolerances or mast cell triggering substances.

Communication – Meeting Your Critical Needs

Communication – Meeting Your Critical Needs

Chapter 5: Communication – Meeting Your Critical Needs. During a crash, it can be difficult to communicate with others. This section references downloadable and printable communication cards to help you communicate your needs. Consider keeping these in your bedside Crash Care Kit or on your electronic device to point/show your caregiver, loved one, or support services.

22 Years of Illness: A Perspective on Gratitude

22 Years of Illness: A Perspective on Gratitude

If you are reading this, congratulations!  You have survived another day.  And that’s something when you’re living with or supporting someone with diseases like myalgic encephalomyelitis, fibromyalgia, long Covid, POTS, mast cell activation syndrome, and similarly complicated fatiguing illnesses. (Even listing them is exhausting!)