Signature microbiome disturbances in ME/CFS may point to biomarker and treatment trials New research reveals differences in the gut microbiomes of people with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) compared to those of healthy controls. ME/CFS is...
If you are reading this, congratulations! You have survived another day. And that’s something when you’re living with or supporting someone with diseases like myalgic encephalomyelitis, fibromyalgia, long Covid, POTS, mast cell activation syndrome, and similarly complicated fatiguing illnesses. (Even listing them is exhausting!)
This blog post covers the second chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
What is ME/CFS and Understanding a Crash
Living with diseases like ME/CFS requires the affected individual to understand the defining characteristic of the disease, post-exertional malaise (PEM), and what it means when the body is pushed into a deep state of PEM, known as a crash. Awareness about how crashes occur, and how to meet the body’s critical needs during a crash, will afford the individual more control over their healing process and living with the disease.
In January 2016, I cut my hair and started wearing wild socks, vowing to do so until we had a biomarker. It must have worked [!] because in 2017 BHC was included in two of the three National Institutes of Health (NIH)-funded ME/CFS Collaborative Centers grants...
The fatigue began at the top of my head and rolled down my body, as if I’d been standing under a cold shower. I felt flushed, chilled, achy, and unsteady on my feet. I had to lean against the display case of the cupcake shop, hoping my son wouldn’t notice. We were on...
Season’s Greetings to all Our Friends of the Bateman Horne Center (BHC). As you may know, our fundraising theme this year is, “Everyone deserves informed medical care.” This is BHC’s message of inspiration that started with Dr. Bateman and has been adopted by every...
Over the past 5 years, 285 of you have participated in an NIH-funded research study at Bateman Horne Center! This study was led by The Jackson Laboratory (JAX), one of the three ME/CFS Collaborative Research Centers funded by the NIH. BHC was the Clinical Core for JAX...
I felt like a normal mom. I had three girls, so I was busy, but I still liked to hike, bike, run and go for walks. I had finished my bachelor’s degree and considered getting a master’s when my youngest started school. I kept up my teaching certificate in the meantime....
Before I got ME/CFS I was a women's health nurse practitioner working in a busy practice. I had spent years of education preparing for this dream job: two bachelor's degrees in biology and nursing and two master's degrees in philosophy of science and nursing. I loved...
Signature microbiome disturbances in ME/CFS may point to biomarker and treatment trials New research reveals differences in the gut microbiomes of people with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) compared to those of healthy controls. ME/CFS is...
If you are reading this, congratulations! You have survived another day. And that’s something when you’re living with or supporting someone with diseases like myalgic encephalomyelitis, fibromyalgia, long Covid, POTS, mast cell activation syndrome, and similarly complicated fatiguing illnesses. (Even listing them is exhausting!)
This blog post covers the second chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
What is ME/CFS and Understanding a Crash
Living with diseases like ME/CFS requires the affected individual to understand the defining characteristic of the disease, post-exertional malaise (PEM), and what it means when the body is pushed into a deep state of PEM, known as a crash. Awareness about how crashes occur, and how to meet the body’s critical needs during a crash, will afford the individual more control over their healing process and living with the disease.
In January 2016, I cut my hair and started wearing wild socks, vowing to do so until we had a biomarker. It must have worked [!] because in 2017 BHC was included in two of the three National Institutes of Health (NIH)-funded ME/CFS Collaborative Centers grants...
The fatigue began at the top of my head and rolled down my body, as if I’d been standing under a cold shower. I felt flushed, chilled, achy, and unsteady on my feet. I had to lean against the display case of the cupcake shop, hoping my son wouldn’t notice. We were on...
Season’s Greetings to all Our Friends of the Bateman Horne Center (BHC). As you may know, our fundraising theme this year is, “Everyone deserves informed medical care.” This is BHC’s message of inspiration that started with Dr. Bateman and has been adopted by every...
Over the past 5 years, 285 of you have participated in an NIH-funded research study at Bateman Horne Center! This study was led by The Jackson Laboratory (JAX), one of the three ME/CFS Collaborative Research Centers funded by the NIH. BHC was the Clinical Core for JAX...
I felt like a normal mom. I had three girls, so I was busy, but I still liked to hike, bike, run and go for walks. I had finished my bachelor’s degree and considered getting a master’s when my youngest started school. I kept up my teaching certificate in the meantime....
Before I got ME/CFS I was a women's health nurse practitioner working in a busy practice. I had spent years of education preparing for this dream job: two bachelor's degrees in biology and nursing and two master's degrees in philosophy of science and nursing. I loved...
Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career - the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.