The fatigue began at the top of my head and rolled down my body, as if I’d been standing under a cold shower. I felt flushed, chilled, achy, and unsteady on my feet. I had to lean against the display case of the cupcake shop, hoping my son wouldn’t notice. We were on...
As I think about the Bateman Horne Center (BHC) I am reminded of its mission of empowering patients, advancing research, and improving clinical care for all those impacted by ME/CFS, FM, post-viral syndromes and related conditions (msCCDs), as well as the vision of...
BHC Education Director, Tahlia Ruschioni presents our latest patient asses, Good Day Bad Day Questionnaire, at the May 11th Messages of Hope awareness event. The following is a transcript of her presentation. Â Tahlia Ruschioni: So I think it goes without saying that...
Despite having worked in the medical field for 15 years, I first learned about ME/CFS during an education lecture Dr. Bateman gave at the University of Utah Health where I was a health educator. During this presentation, I started to see the puzzle pieces of my...
We all have extra on our plates this year, and many coping skills, such as spending time with loved ones and being in community, are not as accessible when we are living with a chronic illness. Stress levels are rising and when stress levels rise, chronic pain and...
When I first started developing patient and provider education on ME/CFS/FM, post-viral illnesses and related conditions, I had no idea just how transformational one year could make in my role. The precedence placed on increasing the medical community's understanding...
"What is ME/CFS?" is the first in a series of short educational videos designed for healthcare professionals. Description In 2015, a committee of the National Academy of Medicine (formally the Institute of Medicine) reviewed the ME/CFS scientific literature and...
My first virology class was taught by Howard Tenim, PhD, a virologist and 1975 Nobel laureate for the discovery of reverse transcriptase - the enzyme used by retroviruses to turn RNA into DNA. I got hooked and have been fortunate to spend the past 35 years learning...
Marybeth Raynes, a licensed marriage and family therapist spoke at our December Education meeting on supports for the holiday season. She demonstrated how people living with pain, exhaustion, and isolation can craft a meaningful inner-self holiday season with guided...
The Bateman Horne Center hosted a panel of four individuals to discuss: Seeking Quality of Life while Living with a Chronic Illness, in the BHC November Education Series. The panel was comprised of four women in different phases of life who experience various...
In this month’s education meeting, Lucinda Bateman, MD, presented ways patients and medical providers can overcome barriers to compassionate care. There are four main barriers to compassionate care: ignorance, the nature of the illness, financial constraints, and...
In our April education meeting we were pleased to host Matt Nelson, DPT, an educator, advocate, and expert in handling chronic and complex pain conditions. He described our current neurological understanding of pain, how pain may be decreased by education through...
Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career - the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.