Posts by Angela Linford
#MillionsMissing 2020 – Virtual Support and Awareness Event
On Tuesday, May 12th at noon, 110 people, reclined, sat and stood gathered around Zoom powered computer screens to commemorate ME/CFS and FM Awareness Day. BHC partnered with Rebecca Cain, #MEAction Utah Representative, to conduct the live virtual #MillionsMissing event. (Link to recording at the bottom of this post.) The SARS-CoV2 pandemic has changed the…
Read MoreSupport Strategies for the Holidays
Marybeth Raynes, a licensed marriage and family therapist spoke at our December Education meeting on supports for the holiday season. She demonstrated how people living with pain, exhaustion, and isolation can craft a meaningful inner-self holiday season with guided imagery and plan strategies for an outer-self holiday with others. Each of us are a collection…
Read MoreUnderstanding the Neuroscience of Pain, Dr. Nelson
In our April education meeting we were pleased to host Matt Nelson, DPT, an educator, advocate, and expert in handling chronic and complex pain conditions. He described our current neurological understanding of pain, how pain may be decreased by education through physical therapy and, thus improve our ability to cope. What is Pain? When the…
Read MoreOurs Is Not a Caravan of Despair: Finding Hope
Dr. Elizabeth Sherlock has watched many family members suffer with ME/CFS throughout the past several decades. In this moving and poetical presentation, she shares what she and her family learned through these experiences and gives ideas on how to find your true self.
Read MoreBHC Program and Research Update
BHC’s mission is to empower patients, advance research, and improve clinical care. What is happening to further those goals? At the November education meeting, Dr. Lucinda Bateman and Dr. Suzanne Vernon shared updates on the programs BHC is developing to ensure that this mission is accomplished. Highlights include development of a patient education program to empower patients, a practitioner education program that will improve clinical care, and implementation of a major research grant to advance the search for biomarkers.
Read MoreME/CFS and Related Illness: Putting It All Together
Understanding how ME/CFS and Fibromyalgia are related to and affected by other illnesses is key in helping patients find relief from symptoms. At the BHC Education Meeting in October, Dr. Nathan Holladay gave a broad view of the key aspects of the various problems that can cause these diseases or make them worse, including infections, immune system issues, and mitochondrial, metabolic, and endocrine dysfunction. Making the connections between these illnesses can help doctors and patients decide on customized treatment methods rather than “one-size-fits-all” treatments.
Read MoreDr. Derya Unutmaz Explains Collaborative Research Center “CRC” with BHC
Derya Unatmaz of Jackson Laboratories explains the partnership between Bateman Horne Center, Jackson Laboratory, and many other collaborators as part of our exciting new research. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating illness that afflicts up to two million individuals in the US and lacks both widely accepted therapies for its management as well…
Read MoreNIH Awards Announced for ME/CFS Research Centers, BHC Key Member of Research Teams
The National Institute of Health has awarded funding for ME/CFS Collaborative Research Centers and Data Coordinating Center to collaborative research teams that include the Bateman Horne Center of Salt Lake City, Utah (BHC). This funding represents the largest single investment in ME/CFS research in the last decade. BHC is a proud partner and collaborator on two of…
Read MoreNutrition: How Food Choices Impact How You Feel
The Whole Sisters (Nan Jensen and Nicole Bangerter) shared their journey with chronic illnesses at the September education meeting. View this presentation to learn about how food choices can affect symptoms. Visit their website for ideas on healthy food choices. Nan and Nicole discuss the importance of organic choices, the “dirty dozen” and the “clean fifteen”. They share tactics to develop self awareness and guidelines for reducing symptom presentation including recipe ideas.
Read MoreA Retrospective & Recognition
Dr. Bateman shares a retrospective look at the progress made by Bateman Horne Center in the last two years. She honors the contribution of Leigh Reynolds and looks ahead with excitement to the future for those impacted by ME/CFS. Six or seven months into the 2015 launch of Bateman Horne Center — the major financial…
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