Chapter 5: Communication – Meeting Your Critical Needs. During a crash, it can be difficult to communicate with others. This section references downloadable and printable communication cards to help you communicate your needs. Consider keeping these in your bedside Crash Care Kit or on your electronic device to point/show your caregiver, loved one, or support services.
This blog post covers the fourth chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
This blog post covers the third chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
This blog post covers the second chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
What is ME/CFS and Understanding a Crash
Living with diseases like ME/CFS requires the affected individual to understand the defining characteristic of the disease, post-exertional malaise (PEM), and what it means when the body is pushed into a deep state of PEM, known as a crash. Awareness about how crashes occur, and how to meet the body’s critical needs during a crash, will afford the individual more control over their healing process and living with the disease.
The fatigue began at the top of my head and rolled down my body, as if I’d been standing under a cold shower. I felt flushed, chilled, achy, and unsteady on my feet. I had to lean against the display case of the cupcake shop, hoping my son wouldn’t notice. We were on...
As I think about the Bateman Horne Center (BHC) I am reminded of its mission of empowering patients, advancing research, and improving clinical care for all those impacted by ME/CFS, FM, post-viral syndromes and related conditions (msCCDs), as well as the vision of...
BHC Education Director, Tahlia Ruschioni presents our latest patient asses, Good Day Bad Day Questionnaire, at the May 11th Messages of Hope awareness event. The following is a transcript of her presentation. Tahlia Ruschioni: So I think it goes without saying that...
Despite having worked in the medical field for 15 years, I first learned about ME/CFS during an education lecture Dr. Bateman gave at the University of Utah Health where I was a health educator. During this presentation, I started to see the puzzle pieces of my...
We all have extra on our plates this year, and many coping skills, such as spending time with loved ones and being in community, are not as accessible when we are living with a chronic illness. Stress levels are rising and when stress levels rise, chronic pain and...
When I first started developing patient and provider education on ME/CFS/FM, post-viral illnesses and related conditions, I had no idea just how transformational one year could make in my role. The precedence placed on increasing the medical community's understanding...
"What is ME/CFS?" is the first in a series of short educational videos designed for healthcare professionals. Description In 2015, a committee of the National Academy of Medicine (formally the Institute of Medicine) reviewed the ME/CFS scientific literature and...
Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career - the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.