We stand on the edge of a precipice and most of the time we keep our eyes trained on the horizon where we can see across to our loved ones to moments of joy happiness contentment. Sometimes we lose our energy and our gaze turns downward into the chasm of despair pain...
In honor of ME/CFS and FM Awareness members of the community, BHC staff and Board submitted a picture of their message of hope to fellow community members and empty shoes. The shoes represent individuals missing from elements of their pre-illness life. We created a...
Reflections at year 5… On top of the world, amazing career, a perfect life Until suddenly I wasn’t Why me, why now? But why not me? Unable to stand, to eat, to sleep, to think Where had I gone? An end, and then a foreign uncharted path Time eased some burdens, some...
"Better Because of M.E." (Myalgic Encephalomyelitis) Despite decades of sickness, I’m still me. I’m still of worth; better because of M.E. More loving, empathetic, patient and kind In spite of “losing” some of my mind. Stuck at home but not in the mud, I “get back up”...
**Trigger Warning: Chronic Illness** "Don't Irritate the Invisible Beast!" Morning birds awake my unrefreshed insomnia ladened eyes as another day has begun. A glimmer of hope flashes through my mind, what if today the Invisible Beast has left my body; will I...
Many investigators pivoted to SARS-CoV-2 and COVID-19 science and medicine in 2020. We did too at BHC because we understood the opportunity the pandemic provided for "real-time" clinical research of post-COVID-19 sequelae and to share all we know about ME/CFS -...
Share Your Message of Hope It’s time to start preparing for ME/CFS and FM Awareness Day! We are holding the 3rd annual Messages of Hope virtual event on May 11th, one day early this year because Dr. Bateman is speaking about ME/CFS at the Long COVID and Fatiguing...
At a time when the world is reeling from conflict, anger and disillusion, we may be hesitant to trust the light on our COVID-19 horizon, but I’d like to share hopeful news. For COVID long haulers: there is an ever-growing scientific and medical response to your...
Despite having worked in the medical field for 15 years, I first learned about ME/CFS during an education lecture Dr. Bateman gave at the University of Utah Health where I was a health educator. During this presentation, I started to see the puzzle pieces of my...
In the coming weeks, BHC will start a new research study that you may be eligible to participate in! This research will assess endothelial function and upright activity in people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID, which is...
Incredible people have spent time at BHC as interns, pre-med students, and clinical research coordinators as a waypoint in their educational journeys. As a part of our mission, we hire and train upcoming researchers and medical professionals to help be a product of...
When Cortene contacted BHC with an idea, and an early draft protocol designed to test CT38 as a treatment for ME/CFS, Dr. Suzanne Vernon and I agreed to help them refine the protocol and conduct the trial. The Cortene-funded trial was an FDA and IRB-approved...
Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career - the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.