Patient Voice

Learn about Patient Voice on our blog
Courage

Courage

It takes courage to live with a chronic illness. It takes courage to be a prisoner in your own body. It takes courage to know that what you have isn't a cold or flu that has an expiration date. It takes courage to go to sleep at night knowing this nightmare won't end...

read more
For the Missing

For the Missing

I went missing years ago Some don’t even know That I spend most days away, inside And then my illness doesn’t show I can’t show all the pain I feel Or fogginess or dread No one sees my energy gone Or the tears I often shed It’s not that I’m just tired Or need to...

read more
We See You. You are Not Missing to Us.

We See You. You are Not Missing to Us.

On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day.  The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.

read more