"Better Because of M.E." (Myalgic Encephalomyelitis) Despite decades of sickness, I’m still me. I’m still of worth; better because of M.E. More loving, empathetic, patient and kind In spite of “losing” some of my mind. Stuck at home but not in the mud, I “get back up”...
Patient Voice
“Don’t Irritate the Invisible Beast!”
**Trigger Warning: Chronic Illness** "Don't Irritate the Invisible Beast!" Morning birds awake my unrefreshed insomnia ladened eyes as another day has begun. A glimmer of hope flashes through my mind, what if today the Invisible Beast has left my body; will I...
Share Expression of Hope for Awareness Day
Share Your Message of Hope It’s time to start preparing for ME/CFS and FM Awareness Day! We are holding the 3rd annual Messages of Hope virtual event on May 11th, one day early this year because Dr. Bateman is speaking about ME/CFS at the Long COVID and Fatiguing...
To the ME/CFS & FM Community
My name is Lisa O’Brien, and I am a COVID Long Hauler and the founder of the Utah COVID-19 Long Haulers group, a group I started almost a year ago when no one would take me seriously after being sick for several months. I knew there would be others in my community who...
The Crushing Aftermath of COVID-19
Being a Long COVID Warrior myself, I wanted to tell my story as well as millions around the world who have never felt well after contracting COVID-19. Many are being diagnosed with ME/CFS, dysautonomia, fibromyalgia and other post-viral illnesses. The weight we feel...
Courage
It takes courage to live with a chronic illness. It takes courage to be a prisoner in your own body. It takes courage to know that what you have isn't a cold or flu that has an expiration date. It takes courage to go to sleep at night knowing this nightmare won't end...
Some Days Fibromyalgia Feels Like
Some days fibromyalgia feels like “Mom.” Can I be your mom today? My mind screams out in dismay Headaches, fatigue, and pain take me away My body pulls me down day after day I struggle to be present when you play To help with your school on the display I want to be...
Share Message of Hope for Awareness Day & #MillionsMissing
Share Your Message of Hope It’s time to start preparing for ME/CFS and FM Awareness Day! This will be our 2nd annual Messages of Hope virtual event. There will be a line-up of speakers (announced soon), a poetry reading, release of Believing Your Patient and Believing...
For the Missing
I went missing years ago Some don’t even know That I spend most days away, inside And then my illness doesn’t show I can’t show all the pain I feel Or fogginess or dread No one sees my energy gone Or the tears I often shed It’s not that I’m just tired Or need to...
#MillionsMissing 2020 – Virtual Support and Awareness Event
On Tuesday, May 12th at noon, 110 people, reclined, sat and stood gathered around Zoom powered computer screens to commemorate ME/CFS and FM Awareness Day. BHC partnered with Rebecca Cain, #MEAction Utah Representative, to conduct the live virtual #MillionsMissing...
We See You. You are Not Missing to Us.
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.
This is Personal: BHC’s Patient-First Perspective
Bateman Horne Center is guided by a board of directors that is intimately connected to ME/CFS and FM. Many have sons, daughters or are themselves managing an illness that has taken much of their life away. Most of you know that our organization is named after Dr. B, but many don’t realize it is also named after her sister, Shauna Horne.