On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.
This Saturday, May 11, 2019, a demonstration will be held on the steps of the SLC Capitol Building at noon to make visible those with ME/CFS who oftentimes suffer in silence, leading a life “unlived”, with significant impact on the sick individual and their families. The event is jointly sponsored by the BHC and #ME Action. It is our mission to mainstream ME/CFS within the medical community, encourage innovative researchers into biomarker identification and streamline collaborations between these two groups.
Families, friends, allies, and advocates of those impacted by ME/CFS are invited to bring a pair of shoes to be left at the steps of the Capitol this Saturday as a representation of the ill individual missing (yes, you can retrieve the shoes later). If you’ve seen the Sundance Documentary film “Unrest”, you’ll remember the powerful image this created when Jen Brea organized the first ever Millions Missing event, featured in the film. Similar Millions Missing events will occur globally on May 12.
Your attendance and support on Saturday will make a difference. RSVP Today, we see you now and we will see you Saturday.
Bateman Horne Center envisions a world where patients with ME/CFS and Fibromyalgia are readily diagnosed, effectively treated, and widely met with empathy and understanding.