News & Blog

Grief Allayed

Grief Allayed

Grief Allayed I lay here in my bed and grieve for what I may not have - for love of spouse and smile Of child and ties bound close to fellow man. These are good things, my heart cries out, and yet I am denied much of the happiness of earth. How can the great good God...

Melissa’s World

Melissa’s World

Melissa's World Each day my room's eternally A prison and infirmary It's not a choice that's up to me Relentlessly I miss my family, lost my friends The list of losses never ends My body breaks, my spirit bends Relentlessly I've tried it all, took every test I...

I Miss…

I Miss…

I Miss…   “I’ll pick you up in 5.” “I’ll be outside.” … I miss spontaneity.   Work was my oxygen. Managing, Teamwork, Sharing, Training … Gone Manager, Vice President, President … Invisible. Committees, Meetings, Flights … Absent. …  I miss work. I miss...

Oz Like

Oz Like

Oz Like Joints as stiff and creaky as the Tin Man… When, oh when will they find a lubricant that works for them… Brain as foggy as the Scarecrow… Can’t concentrate, can’t comprehend, can’t remember, will this fog lift someday, somehow… Fear as deep as the Cowardly...

Oh How I Miss Reading

Oh How I Miss Reading

Oh How I Miss Reading   Oh how I miss reading, The ability to get lost in a book, To be swept away by the story, To hear the characters in my head!   I’ve been robbed of the ability to concentrate, Absorb meaning, Follow the story.   Eyes so tired, Eyes...

I Wish I Could Say, “Yes”

I Wish I Could Say, “Yes”

I wish I could say, “yes,” … that I can go with you to the concert. … that I can figure out the grocery list, go to the store, and unpack when I get home. … that I can walk with you around our neighborhood. … that I will vacuum the house and do the laundry and cook...

Watching the World

Watching the World

Watching the World   I open the door from my room I watch the world People in school for degrees People on sunny sandy beaches People winning awards People on trips with friends I love watching everything I dream of joining in I wonder about being part I close...

Hope

Hope

HOPE   I hope you never wake up one day and realize your illness will never get better I hope you are never told you’re being denied care in the form of a letter   I hope that you never feel anxiety to see doctors out of fear I hope that you never have to...

ME/CFS Had Other Plans

ME/CFS Had Other Plans

I was proud to be a civil servant who worked on the remediation of hazardous waste sites for the US EPA. I was 20 years in and figured I had 20 more to go. But at 42 years of age, ME had other plans. After a day of cross country skiing, ignoring what I now know were...

Grief Allayed

Grief Allayed

Grief Allayed I lay here in my bed and grieve for what I may not have - for love of spouse and smile Of child and ties bound close to fellow man. These are good things, my heart cries out, and yet I am denied much of the happiness of earth. How can the great good God...

Melissa’s World

Melissa’s World

Melissa's World Each day my room's eternally A prison and infirmary It's not a choice that's up to me Relentlessly I miss my family, lost my friends The list of losses never ends My body breaks, my spirit bends Relentlessly I've tried it all, took every test I...

I Miss…

I Miss…

I Miss…   “I’ll pick you up in 5.” “I’ll be outside.” … I miss spontaneity.   Work was my oxygen. Managing, Teamwork, Sharing, Training … Gone Manager, Vice President, President … Invisible. Committees, Meetings, Flights … Absent. …  I miss work. I miss...

Oz Like

Oz Like

Oz Like Joints as stiff and creaky as the Tin Man… When, oh when will they find a lubricant that works for them… Brain as foggy as the Scarecrow… Can’t concentrate, can’t comprehend, can’t remember, will this fog lift someday, somehow… Fear as deep as the Cowardly...

Oh How I Miss Reading

Oh How I Miss Reading

Oh How I Miss Reading   Oh how I miss reading, The ability to get lost in a book, To be swept away by the story, To hear the characters in my head!   I’ve been robbed of the ability to concentrate, Absorb meaning, Follow the story.   Eyes so tired, Eyes...

I Wish I Could Say, “Yes”

I Wish I Could Say, “Yes”

I wish I could say, “yes,” … that I can go with you to the concert. … that I can figure out the grocery list, go to the store, and unpack when I get home. … that I can walk with you around our neighborhood. … that I will vacuum the house and do the laundry and cook...

Watching the World

Watching the World

Watching the World   I open the door from my room I watch the world People in school for degrees People on sunny sandy beaches People winning awards People on trips with friends I love watching everything I dream of joining in I wonder about being part I close...

Hope

Hope

HOPE   I hope you never wake up one day and realize your illness will never get better I hope you are never told you’re being denied care in the form of a letter   I hope that you never feel anxiety to see doctors out of fear I hope that you never have to...

ME/CFS Had Other Plans

ME/CFS Had Other Plans

I was proud to be a civil servant who worked on the remediation of hazardous waste sites for the US EPA. I was 20 years in and figured I had 20 more to go. But at 42 years of age, ME had other plans. After a day of cross country skiing, ignoring what I now know were...