Posts Tagged ‘NIH’
BHC Participates in NIH-Sponsored ME/CFS Meeting
The NIH will host 3 days of meetings focusing on ME/CFS research. The meeting on April 3 is titled, “Thinking the Future: A Workshop for Young Early Career ME/CFS Investigators”. This is followed on April 4–5 with a meeting titled, “Accelerating Research on ME/CFS”. The presentations for this meeting will be given by the veteran…
Read MoreNIH Announces Precision Medicine Initiative
Research tends to neglect ME/CFS and FM – until right now. Precision medicine is the emerging scientific idea that medical treatment can and should be maximally efficient by tailoring medicine and healthcare to individual circumstances. Current research studies, however, do not have the size and diversity necessary to produce enough statistical power for individualized treatments.…
Read MoreWhat’s the Buzz – January 2017
Buzz – January 2017: We scoured the Internet to bring you a list of news articles, blogs and research publications we think you’ll find interesting for this month’s What’s the Buzz post. On January 27th, the NIH made two big announcements of federal funding for ME/CFS collaborative research centers and Data Management and Coordinating Centers. While some feel the…
Read MoreGlobal Report of Progress with Lucinda Bateman, M.D.
An ME/CS Progress Report Lucinda Bateman, MD, BHC Founder and Medical Director, is actively engaged in ME/CFS and FM thought leadership across the globe. In October she was on the road to take part in and advance the discussions that lead to progress. In a few short weeks she participated in: October 8th – SMCI Scientific…
Read MoreWhat’s the Buzz – July
Buzz – July: Each month we scour the Internet and bring you a list of news articles, blogs and research publications we think you’ll find interesting for our What’s the Buzz post. Occasionally, we’ll highlight and summarize a few of them for you, like this one: Could Difference in Gut Bacteria Help Explain ME/CFS Symptoms? Suzanne D.…
Read MoreBateman Horne Center Response to NIH RFI
BHC prepared the following response the NIH Request For Information (RFI) regarding the future of ME/CFS research Sixteen different centers within the NIH sought input concerning new research strategies for ME/CFS. They asked patients and advocates to tell the Trans-NIH Working Group on ME/CFS what kind of opportunities they see for studying the illness, what technologies and…
Read MoreNIH Charting It’s Course for ME/CFS
Sixteen different centers within the NIH have come together to seek input concerning new research strategies for ME/CFS. They are asking patients and patient advocates to tell the Trans-NIH Working Group on ME/CFS what kind of opportunities there are for studying the illness, what technologies and tests might be utilized in studying it, and what challenges ME/CFS…
Read MoreBiomarkers or Bust
Dr. Vernon explains why for the Bateman Horne Center, the identification of biomarkers is mission-critical… It’s Biomarkers or Bust! __________ Back in 2008 when I was advocating on the Hill and at NIH for greater research dollars for ME/CFS research I was told, “Identify biomarkers and increased research dollars will follow.” A Catch 22 if…
Read More$3.28 Million Awarded for ME/CFS Biomarker Study
Bateman Horne Center Leadership are Co-Investigators on this Cutting-Edge Immunogenomic Study to Quantify ME/CFS Moving Toward a Genomic CBC for ME/CFS By Suzanne D Vernon, PhD There are two major barriers to identifying ME/CFS biomarkers: 1) variation in how patients are effected, in terms of symptoms and disease progression and 2) the lack of quantitative tools…
Read MoreWhat’s the Buzz – April
Buzz – April: Each month we scour the Internet and bring you a list of news articles, blogs and research publications we think you’ll find interesting for our What’s the Buzz post. Occasionally, we’ll highlight and summarize a few of them for you, like these: It is estimated that at least 50% of ME/CFS and Fibromyalgia patients…
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