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Posts by Leigh Reynolds

Tips for Carepartners

When Someone You Love has ME/CFS or FM There are many diseases that can be considered invisible, but there are substantial differences in how individuals are viewed culturally and socially, depending on their diagnoses. Diabetes, lupus, MS, and others can be invisible illnesses, but few would ever question the limitations of someone with one of…

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Help Improve the CFSAC FAQ

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS).   You can learn more about CFSAC by reading the committee charter  and reviewing past recommendations the committee has sent to the…

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Living With a Partner Who Has ME/CFS or FM

Chronic illness and marriage is a complicated combination. It’s rare to see  or hear a healthy spouse’s perspective on their partner’s disease because it is a topic that can be very difficult – as much for the one speaking as for the one hearing it. With an estimated divorce rate as high as 75% among…

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Patient Voice – Being Heard

One of the most important things you can do for some one suffering from ME/CFS and Fibromyalgia is to be understanding, supportive and to listen. Just listening can be such a special gift to someone. Do you recall a time you really felt heard? Is there someone in your life who is a great support…

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Feedback Survey – We Want to Hear from You!

“Listening is being able to be changed by the other person.” –Alan Alda In 2015, the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER) came together to form the Bateman Horne Center (BHC). We envisioned a world where patients with ME/CFS and Fibromyalgia are readily diagnosed, effectively treated, and…

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Novel Gene Variants in ME/CFS and Fibromyalgia

Presented by Alan R. Light, PhD. In February 2017, Dr. Light began a new NIH-funded research grant, Novel Gene Variants in ME/CFS and Fibromyalgia. This is a continuation of earlier work which discovered a number of novel variants in both chromosomal and mitochondrial genes that could contribute to the symptoms found in patients. This talk…

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Guest Post: Student Seeking Feedback from ME/CFS Patients

Brooke Denmark, a student working on her Masters in Social Work, contacted the Bateman Horne Center asking us to share her thesis research questionnaire in order to garner feedback from those living with ME/CFS.  Your participation as a research participants merely involves responding to an online questionnaire. The Bateman Horne Center was not involved in the creation…

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What’s the Buzz – January 2017

Buzz – January 2017: We scoured the Internet to bring you a list of news articles, blogs and research publications we think you’ll find interesting for this month’s What’s the Buzz post.   On January 27th, the NIH made two big announcements of federal funding for ME/CFS collaborative research centers and Data Management and Coordinating Centers. While some feel the…

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BHC Partners with UNREST Premiere at Sundance

After years of work and hundreds of hours of footage, Jen Brea’s documentary, now entitled Unrest, recently debuted at the Sundance Resort as part of the Sundance Film Festival. The Bateman Horne Center (BHC) was honored to partner with Ms. Brea and Unrest on one of several screening events. On Sunday, January 22nd, BHC helped fill a theatre with…

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CFS Advisory Committee (CFSAC)

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). Administrative and management support for CFSAC is provided by the HHS Office on Women’s Health in the Office of…

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