Exploding Myths of Chronic Illness in Family Life

by | Oct 7, 2016 | ME/CFS, Patient Education

exploding myths

Heather JarmanPresented by Heather Jarman

When serious illness is diagnosed in a young person, parents are often the first people called upon to be medical caregivers for their child. Few parents are adequately prepared for the enormity of the challenges associated with such a massive life change, regardless of a child’s age. Part of making the burden manageable is dealing with harmful perceptions and misunderstandings of illness, patients and care-giving that too often cripple those least equipped to handle them: the patient and the patient’s caregiver.

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In a lifetime before her daughter’s illness, Heather Jarman was a freelance fiction writer and editor, having published several novels in the Star Trek: Deep Space Nine, Star Trek: Voyager and Starfleet Corps of Engineers series. Studying English literature and modern history at university did not prepare her for having a child with a complex, multi-system illness. However her passion for science fiction world-building gave her a launching pad for real life efforts to study the myriad complexities of poorly understood diseases and the theories behind them. Seeking better treatment for her daughter brought Heather and her family back to the US in 2014 after 7 years living in Russia and Germany. She currently lives in the Pacific Northwest with her husband, daughter, and a year old Boxer puppy named Roo.

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The Bateman Horne Center holds monthly education meetings on the first Wednesday of each month. Patients in the Salt Lake City area are invited to attend in person, meet others and engage in a live Q&A. All of the sessions are broadcast via YouTube live stream, making them available to all. There is no need to register and the livestream events are always free. The link never changes: http://www.youtube.com/c/OfferutahOrg/live

After the education meeting takes place, all recordings are archived here on the BHC blog, in the patient library, and on the BHC YouTube channel.

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By Leigh

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