Presented by Heather Jarman
When serious illness is diagnosed in a young person, parents are often the first people called upon to be medical caregivers for their child. Few parents are adequately prepared for the enormity of the challenges associated with such a massive life change, regardless of a child’s age. Part of making the burden manageable is dealing with harmful perceptions and misunderstandings of illness, patients and care-giving that too often cripple those least equipped to handle them: the patient and the patient’s caregiver.
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In a lifetime before her daughter’s illness, Heather Jarman was a freelance fiction writer and editor, having published several novels in the Star Trek: Deep Space Nine, Star Trek: Voyager and Starfleet Corps of Engineers series. Studying English literature and modern history at university did not prepare her for having a child with a complex, multi-system illness. However her passion for science fiction world-building gave her a launching pad for real life efforts to study the myriad complexities of poorly understood diseases and the theories behind them. Seeking better treatment for her daughter brought Heather and her family back to the US in 2014 after 7 years living in Russia and Germany. She currently lives in the Pacific Northwest with her husband, daughter, and a year old Boxer puppy named Roo.
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The Bateman Horne Center holds monthly education meetings on the first Wednesday of each month. Patients in the Salt Lake City area are invited to attend in person, meet others and engage in a live Q&A. All of the sessions are broadcast via YouTube live stream, making them available to all. There is no need to register and the livestream events are always free. The link never changes: https://www.youtube.com/c/OfferutahOrg/live
After the education meeting takes place, all recordings are archived here on the BHC blog, in the patient library, and on the BHC YouTube channel.
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Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career - the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.