My Story in Art

My Story in Art

When you are living with chronic illness like ME/CFS and Fibromyalgia, engaging in healthy grieving can be among the many challenges. You may face periods of shock and numbness, denial, anger, and intense emotional pain. Experts say it is essential that you engage...
Patient Voice – Back to School

Patient Voice – Back to School

Topic for September: Tell us about something your chronic illness has taught you. Living with ME/CFS and Fibromyalgia, so much is lost, but many tell us of the things they’ve gained as well. How have you learned to live a full life, in spite of living with a...
Finding Recreation Again

Finding Recreation Again

When someone is living with a debilitating chronic illness, one of the first things come to an end is any kind of recreational activity, for self and for the family. There are a number of adaptive recreation organizations across the US that can help people of all...
Ten Minutes in Living Color

Ten Minutes in Living Color

In this entry of the Patient Voice, Anne shares how her love of quilting, and carving out just a few minutes at her longarm frame, brought her ten minutes in living color – a sense of normalcy and bliss. If you have a similar story to tell, please share it with...
Patient Voice – Brave, Strong, and Smart

Patient Voice – Brave, Strong, and Smart

Topic for August : Tell us about a time when you felt brave, strong, or smart. What were the circumstances that led you to that moment? Who helped you get there? Living a life with ME/CFS or Fibromyalgia is one full of challenges. But as a wise Christopher Robin once...