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Posts Tagged ‘improving clinical care’

Guest Post: Student Seeking Feedback from ME/CFS Patients

Brooke Denmark, a student working on her Masters in Social Work, contacted the Bateman Horne Center asking us to share her thesis research questionnaire in order to garner feedback from those living with ME/CFS.  Your participation as a research participants merely involves responding to an online questionnaire. The Bateman Horne Center was not involved in the creation…

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Dr. Bateman Determined to Power-Up in 2017

Dr. Bateman, BHC founder and medical director, reflects on the progress in 2016 and plans to power-up her dedication to patients. __________ The “wear wild socks” year was amazing, marked by the quick-paced steps of the turtle-carrying-hares toward illness recognition and biomarker discovery.  (Read how it all began HERE.)  The recipe for this success has been…

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Redefining POTS so that Everybody Understands

“Redefining POTS so that everybody understands: a primary care pediatric sports medicine perspective and review” Presented by Dr. Craig Colebey   Postural Orthostatic Tachycardia Syndrome or POTS is a disabling disorder, representing “a common pathway” for multiple different causes.  The heterogenous nature of its pathophysiology presents a challenge in its diagnosis and treatment.  I present…

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Global Report of Progress with Lucinda Bateman, M.D.

An ME/CS Progress Report Lucinda Bateman, MD, BHC Founder and Medical Director, is actively engaged in ME/CFS and FM thought leadership across the globe. In October she was on the road to take part in and advance the discussions that lead to progress. In a few short weeks she participated in: October 8th – SMCI Scientific…

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Overcome Fear After Diagnosis

Being diagnosed with a chronic illness such as ME/CFS or Fibromyalgia can be quite a blow. Being afraid is one of the most common reactions to forced changes, but it isn’t something you should let consume your life. It’s normal to experience a range of emotions in the wake of such a diagnosis. However, you…

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Simple Way to Assess Orthostatic Intolerance

NASA 10 Minute Lean Test* Orthostatic intolerance (OI) is an umbrella term used to describe abnormal autonomic nervous system response to orthostatic challenge.  Orthostatic hypotension (OH), neurally mediated hypotension (NMH) [or neurogenic hypotension] and postural orthostatic tachycardia syndrome (PoTS) are terms used to describe variants of this response.  The new evidence-based IOM clinical criteria for…

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First-Class Care; First-Class Space

In our spring campaign we set a goal to raise $300,000 that would allow us to move into a larger facility in order to serve more patients, expand education efforts, and increase research participation. Earlier this month, we announced that we had exceeded our goal by more than 260%, raising more than $1.08 million! Well, the turtles have…

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BHC Raises $1.08 Million, Moving to New Facility!

We’re Moving!  In our spring campaign we laid out an audacious goal to raise $300,000 that would allow us to move into a larger facility in order to serve more patients, expand education efforts, and increase research participation. We are thrilled to announce that we have exceeded our goal by more than 260%, raising more than…

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Pregnancy and ME/CFS

ME/CFS presents additional complexities when making decisions about childbearing. There are options for building a strong network of support to manage pregnancy and help cope with the challenges of parenting with ME/CFS. We hope the following information can help. Pregnancy and ME/CFS   By Peggy Rosati Allen, MS, CNM, WHNP Assistant Professor, Clinical University of Utah College of…

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$3.28 Million Awarded for ME/CFS Biomarker Study

Bateman Horne Center Leadership are Co-Investigators on this Cutting-Edge Immunogenomic Study to Quantify ME/CFS Moving Toward a Genomic CBC for ME/CFS By Suzanne D Vernon, PhD There are two major barriers to identifying ME/CFS biomarkers: 1) variation in how patients are effected, in terms of symptoms and disease progression and 2) the lack of quantitative tools…

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