In this edition of the Patient Voice, Eleanor writes about the soundtrack of her life: How her journey with Fibromylagia and ME/CFS silenced the music for a while, but with some help from Dr. Bateman and BHC, she is finding ways to put the music back into her life...
'Ginger' writes about her journey through sickness, sadness, laughter and joy. She describes herself as an optimistic, stubborn, pretty determined “ginger” battling the ails of getting sick as a little kid with ME/CFS, Fibromyalgia & Immune Deficiency. “I’ve...
Announcement: The IACFS/ME has put out a call for young artist to submit their artwork for their cover art contest related to a new Primer for pediatric ME/CFS. The International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) is...
Topic for March : “Tell about music that moves you. A song you love and why - Does it motivate or inspire you? Transport or soothe you?” March is National Music in our Schools Month, celebrating how music motivates and inspires. In honor of this, our Patient Voice...
In this submission to Patient Voice, Claudia Goodell shares how she discovered a love of art which showed her a pathway to emotional healing, despite there being no physical cure for her debilitating illness. She also tells how she has channeled her skills into...
by Karey Shane It's difficult to describe the depth of loneliness that creeps into the soul of those with chronic pain and fatigue. Hundreds of waking hours in isolation eventually turn into tens of thousands of hours. Facebook photos on a person's good day show...
A poem by Ellen Phillips i gather dust like the house crawl upstairs & kneel before the miracle of a bath marvel at the view from the rooftops pray for kindness in the aftermath each breath a miracle each step a miracle before closing my eyes again i allow...
At the Bateman Horne Center, empowering patients to find their strongest voice and live their best life is the first and most important component of our mission. We strive to strengthen community and share the beauty of the human spirit that lives within all impacted...
Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career - the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.