A poem by Ellen Phillips
i gather dust like the house
crawl upstairs & kneel before the miracle of a bath
marvel at the view from the rooftops
pray for kindness in the aftermath
each breath a miracle
each step a miracle
before closing my eyes again
i allow the hope of what was & what yet may be.
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At the Bateman Horne Center, empowering patients to find their strongest voice and live their best life is the first and most important component of our mission. It is why we do all that we do. Advancing research and improving clinical care wouldn’t mean as much if we didn’t first and foremost strive to strengthen community and share the beauty of the human spirit that lives within all impacted by ME/CFS and Fibromylagia.
With that in mind, we want to build a special place online for members of our community to share their stories. Our goal is to highlight the strength, joy, humor and beauty that can be found in a life changed by ME/CFS and Fibromyalgia. Our goal is to lift your voice a little higher and help your story be heard loud and clear.
If you have a submission you’d like us to consider, please email it to [email protected] with “Submission” in the subject line

Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career – the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.