When you are living with chronic illness like ME/CFS and Fibromyalgia, engaging in healthy grieving can be among the many challenges. You may face periods of shock and numbness, denial, anger, and intense emotional pain. Experts say it is essential that you engage...
Topic for September: Tell us about something your chronic illness has taught you. Living with ME/CFS and Fibromyalgia, so much is lost, but many tell us of the things they've gained as well. How have you learned to live a full life, in spite of living with a...
When someone is living with a debilitating chronic illness, one of the first things come to an end is any kind of recreational activity, for self and for the family. There are a number of adaptive recreation organizations across the US that can help people of all...
In this entry of the Patient Voice, Anne shares how her love of quilting, and carving out just a few minutes at her longarm frame, brought her ten minutes in living color - a sense of normalcy and bliss. If you have a similar story to tell, please share it with us....
Parenting is one of life’s greatest challenges, made all the more complex if your child has a chronic illness like ME/CFS. We want you to know that you have options for building a strong network of support to help cope with the challenges of special needs parenting....
Topic for August : Tell us about a time when you felt brave, strong, or smart. What were the circumstances that led you to that moment? Who helped you get there? Living a life with ME/CFS or Fibromyalgia is one full of challenges. But as a wise Christopher Robin once...
This past May - May 12th International ME/CFS and FM Awareness Day - BHC patient and friend, Jo Ivie, decided to put a positive spin on the day and do something personal and close to home - she hosted a Chronically Ill Tea Party. We thought it was such an amazing idea...
Relief can come in the smallest of moments and simplest of gestures. In this edition of the Patient Voice, Darla shares how a brief conversation with an empathetic professor gave her the release and instant relief she had prayed for just moments before. Darla is a...
In this entry to the Patient Voice, Mark tells us about a time when he was met with a radical kindness that he didn’t expect - all because of a simple Facebook post. Mark shares how he has found the chronic illness community to be one of great kindness throughout his...
Topic for June/July : “Tell us about a time when someone showed you unexpected kindness and it had a positive impact on you as you manage your chronic illness” The personal motivation that led Dr. Bateman to open the Fatigue Consultation Clinic (FCC) and start the...
In this edition of the Patient Voice, Mae Beth writes about facing the trifecta of Fibromyalgia, ME/CFS, and breast cancer in her life. When Dr. Bateman, who recently battled breast cancer as well, encouraged Mae Beth to share her story she was inspired to write her...
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. This date has been designated as an international day for awareness since 1992 and over the years it has evolved into a kick-off event for awareness...
Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career - the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.