To a loved one of someone with a chronic illness: The intention behind this letter is to share the importance of believing and validating your loved one with chronic illness. This may seem simple, and perhaps even obvious, but the power behind these actions can be...
Introduction It is hard to know how to support others when their health becomes compromised. It can leave you feeling powerless and unsure of what to do. It is even harder when your loved one is afflicted by an “invisible illness.” An illness where there isn’t a cast...
My name is Lisa O’Brien, and I am a COVID Long Hauler and the founder of the Utah COVID-19 Long Haulers group, a group I started almost a year ago when no one would take me seriously after being sick for several months. I knew there would be others in my community who...
It takes courage to live with a chronic illness. It takes courage to be a prisoner in your own body. It takes courage to know that what you have isn't a cold or flu that has an expiration date. It takes courage to go to sleep at night knowing this nightmare won't end...
Share Your Message of Hope It’s time to start preparing for ME/CFS and FM Awareness Day! This will be our 2nd annual Messages of Hope virtual event. There will be a line-up of speakers (announced soon), a poetry reading, release of Believing Your Patient and Believing...
COVID-19 has changed our world and at least 10% of those who become ill may have long term effects. These “long haulers” have many similar symptoms to ME/CFS and FM patients. It is critical for BHC to join the assessment, treatment, and education of these patients...
We all have extra on our plates this year, and many coping skills, such as spending time with loved ones and being in community, are not as accessible when we are living with a chronic illness. Stress levels are rising and when stress levels rise, chronic pain and...
When I first started developing patient and provider education on ME/CFS/FM, post-viral illnesses and related conditions, I had no idea just how transformational one year could make in my role. The precedence placed on increasing the medical community's understanding...
It's Research Week at Bateman Horne Center! This means that as part of our Mission Possible giving campaign we fill you in on why research is so important to our organization and how we are using it to improve the lives of those with ME/CFS, fibromyalgia, post-viral...
Prior to joining the team here at BHC, I worked as a rheumatologist, specializing in a host of autoimmune diseases. Rheumatologists are often inundated with referrals for complex multisystem illness presentations, and we frequently encounter complicated patients...
"What is ME/CFS?" is the first in a series of short educational videos designed for healthcare professionals. Description In 2015, a committee of the National Academy of Medicine (formally the Institute of Medicine) reviewed the ME/CFS scientific literature and...
I went missing years ago Some don’t even know That I spend most days away, inside And then my illness doesn’t show I can’t show all the pain I feel Or fogginess or dread No one sees my energy gone Or the tears I often shed It’s not that I’m just tired Or need to...
Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career - the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.