In January 2016, I cut my hair and started wearing wild socks, vowing to do so until we had a biomarker. It must have worked [!] because in 2017 BHC was included in two of the three National Institutes of Health (NIH)-funded ME/CFS Collaborative Centers grants...
ME/CFS
The Germiest Place on Earth
The fatigue began at the top of my head and rolled down my body, as if I’d been standing under a cold shower. I felt flushed, chilled, achy, and unsteady on my feet. I had to lean against the display case of the cupcake shop, hoping my son wouldn’t notice. We were on...
Research Participant Data Integration
Over the past 5 years, 285 of you have participated in an NIH-funded research study at Bateman Horne Center! This study was led by The Jackson Laboratory (JAX), one of the three ME/CFS Collaborative Research Centers funded by the NIH. BHC was the Clinical Core for JAX...
From My Dream Medical Job to Life with ME/CFS
Before I got ME/CFS I was a women's health nurse practitioner working in a busy practice. I had spent years of education preparing for this dream job: two bachelor's degrees in biology and nursing and two master's degrees in philosophy of science and nursing. I loved...
Josie’s Story
I was only 11 years old when I got ME/CFS and my life changed forever. Before ME, I was a normal, happy kid. I loved going to school and got straight A’s. I was that crazy kid who couldn’t wait for school to restart after a break. I also loved music. I played the...
My 36-Year Journey with ME/CFS and FM
Prior to becoming sick, I worked a variety of jobs including an orthodontic receptionist, dental assistant, massage therapist, yoga instructor, answering service operator, waitress, cleaner, and costume jewelry designer and maker. I loved riding my ten-speed bicycle...
The Day My Life Changed
After high school, I attended and graduated from a class in machinist training through NASA. I worked for multiple machine shops throughout the years and ultimately became a journeyman machinist, CNC milling/CNC lathe programmer. In the late 1990s/early 2000s I...
A Physician’s Journey with ME/CFS
As I think about the Bateman Horne Center (BHC) I am reminded of its mission of empowering patients, advancing research, and improving clinical care for all those impacted by ME/CFS, FM, post-viral syndromes and related conditions (msCCDs), as well as the vision of...
I Have Learned…
I Have Learned... My worth is not in what I can do, it is in who I am That people don’t really think about the fact you are in a wheelchair Except to be on the alert if they might be able to help you The grieving process is a circle I have hard days, but I had hard...
OMF and BHC Join Forces to Improve Patient Care
I am proud--and excited--to announce a new and important collaboration between BHC and OMF. We are jointly launching the Medical Education Resource Center (MERC) for multisystem chronic complex diseases (msCCD). Our two respected organizations will bring complementary...
Big News! OMF Partners with BHC on Medical Education
Today, I am honored to announce that Open Medicine Foundation and Bateman Horne Center are partnering to launch a much-needed Medical Education Resource Center for multi-system chronic complex diseases (msCCD) to increase access to knowledgeable healthcare providers....
Inspired by BHC’s Idealism
As part of our mission, we train upcoming and current medical professionals and researchers to help be a product of change in the medical and scientific fields surrounding these illnesses. This month we hear from Melanie Hoppers, MD. I am...