The National Institute of Health has awarded funding for ME/CFS Collaborative Research Centers and Data Coordinating Center to collaborative research teams that include the Bateman Horne Center of Salt Lake City, Utah (BHC). This funding represents the largest single...
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Pass or Fail? A Young Patient’s Perspective
Written by Brooklyn Ingram, a young person with ME/CFS, this blog post describes her refusal to be defined by a disease. Read more of her blog Future Dead Person here. We live in a culture that demands clearly defined roles for every individual. I see these roles in...
Dr. Derya Unutmaz Explains Collaborative Research Center “CRC” with BHC
Derya Unatmaz of Jackson Laboratories explains the partnership between Bateman Horne Center, Jackson Laboratory, and many other collaborators as part of our exciting new research. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating illness...
A Retrospective & Recognition
Dr. Bateman shares a retrospective look at the progress made by Bateman Horne Center in the last two years. She honors the contribution of Leigh Reynolds and looks ahead with excitement to the future for those impacted by ME/CFS. Six or seven months into the 2015...
A Priceless Contribution: A Tribute to Leigh Reynolds
Suzanne Vernon pays tribute to Leigh Reynolds of Altimeter Consulting who broke ground in the evolution of the Bateman Horne Center from a small medical clinic to a nonprofit center of excellence with a national footprint. For the past 5 years, I’ve had the good...
Not Without ME
A Research Update On May 3rd, at the monthly BHC Education Meeting, Linda Avey and Suzanne D. Vernon, PhD discussed their cutting-edge research collaboration. Linda described how her team is working together with the Bateman Horne Center to track data, chart...
Guest Post: Student Seeking Feedback from ME/CFS Patients
Brooke Denmark, a student working on her Masters in Social Work, contacted the Bateman Horne Center asking us to share her thesis research questionnaire in order to garner feedback from those living with ME/CFS. Your participation as a research participants merely...
CFS Advisory Committee (CFSAC)
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome...
Parenting a Child with ME/CFS
Parenting is one of life’s greatest challenges, made all the more complex if your child has a chronic illness like ME/CFS. We want you to know that you have options for building a strong network of support to help cope with the challenges of special needs parenting....
Biomarkers or Bust
Dr. Vernon explains why for the Bateman Horne Center, the identification of biomarkers is mission-critical... It's Biomarkers or Bust! __________ Back in 2008 when I was advocating on the Hill and at NIH for greater research dollars for ME/CFS research I was told,...
$3.28 Million Awarded for ME/CFS Biomarker Study
Bateman Horne Center Leadership are Co-Investigators on this Cutting-Edge Immunogenomic Study to Quantify ME/CFS Moving Toward a Genomic CBC for ME/CFS By Suzanne D Vernon, PhD There are two major barriers to identifying ME/CFS biomarkers: 1) variation in how patients...
International ME/CFS & Fibromyalgia Awareness Day – May 12
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. This date has been designated as an international day for awareness since 1992 and over the years it has evolved into a kick-off event for awareness...