Posts Tagged ‘orthostatic intolerance’
When Mommy Can’t Dance: How to Be a Chronically Ill Mom
It’s a hard to be a sick mom. For most mothers, a few days of illness may mean a back-up of laundry and a night or two of frozen pizza or cold cereal for dinner. For those of us moms that are chronically ill, it’s a whole other ball game. Certainly we have to adapt, get creative, and employ as many mom hacks as we can (i.e. Amazon prime, grocery pick up, self-serve kid snacks, and yes, we still have an above average number of cereal dinners). Beyond the physical demands and limitations, however, are the mental and emotional obstacles that we face. The mom guilt is present enough when you are healthy; it can be even more crushing when you are not.
Read MoreWhat I Learned from the NASA 10-Minute Lean Test
Written by a patient who participated in a BHC research study to validate a new protocol used to assess orthostatic intolerance. Here she shares what she unexpectedly learned from her NASA 10-Minute Lean Test at BHC To be perfectly honest, when I decided to participate in the NASA Lean Test Research study at BHC, I…
Read MoreNASA 10-Minute Lean Test
A Simple Way to Assess Orthostatic Intolerance On June 7, 2017, at the monthly BHC Education Meeting, Pelle Wall, BHC Research Coordinator, reviewed the procedure and shared information about the research underway. Orthostatic intolerance (OI) is an umbrella term used to describe abnormal autonomic nervous system response to orthostatic challenge. Orthostatic hypotension (OH), neurally mediated hypotension (NMH) [or…
Read MoreDream Teams Assemble to Advance Research
“Advancing Research” is central to Bateman Horne Centers’ mission of empowering patients and improving clinical care for ME/CFS and FM. The trick of course is figuring out the best way to advance research. This is a decision any organization targeting research into these complex conditions must wrestle with. At the 2016 IACFSME conference it was…
Read MoreStandardizing Measurement of ME/CFS Core Symptoms
Dr. Suzanne D. Vernon, BHC research liaison, explains how the IOM report defining the core symptoms of ME/CFS also define the BHC research roadmap. ________ At the October 2012 CFS Advisory Committee meeting Dr. Sandra Kweder, Deputy Director of the Office of New Drugs at the FDA stated, “When there is confusion, lack of consensus…
Read MoreRedefining POTS so that Everybody Understands
“Redefining POTS so that everybody understands: a primary care pediatric sports medicine perspective and review” Presented by Dr. Craig Colebey Postural Orthostatic Tachycardia Syndrome or POTS is a disabling disorder, representing “a common pathway” for multiple different causes. The heterogenous nature of its pathophysiology presents a challenge in its diagnosis and treatment. I present…
Read MoreA Report of Research Progress in 2016
Because of the investment of many supporters – donors large and small – the Bateman Horne Center (BHC) has been able to partner with cutting-edge researchers across the globe. BHC works directly with researchers to enroll well-categorized patients into their research, providing samples with material transfer agreements in place so that we continue to learn from…
Read MoreA Report of Clinical Progress in 2016
Improved objective diagnosis and the ability to assess treatment outcomes, has made many aspects of MECFS and FM appear before my eyes. I am committed to infusing the medical community with this information to dramatically improve patient diagnosis and treatment. Careful observation of 10 minute NASA Lean test results as part of the CDC multisite…
Read MoreGlobal Report of Progress with Lucinda Bateman, M.D.
An ME/CS Progress Report Lucinda Bateman, MD, BHC Founder and Medical Director, is actively engaged in ME/CFS and FM thought leadership across the globe. In October she was on the road to take part in and advance the discussions that lead to progress. In a few short weeks she participated in: October 8th – SMCI Scientific…
Read MoreWhat’s the Buzz – October
Buzz – October: Each month we scour the Internet to bring you a summary of news articles, blogs and research publications we think you’ll find interesting for our What’s the Buzz post. This month, Suzanne D. Vernon, PhD, BHC Research Liaison, highlights and summarize two recent research publications for you: The Importance of Measuring Symptoms ME/CFS is…
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