Posts Tagged ‘orthostatic intolerance’
Standardizing Measurement of ME/CFS Core Symptoms
Dr. Suzanne D. Vernon, BHC research liaison, explains how the IOM report defining the core symptoms of ME/CFS also define the BHC research roadmap. ________ At the October 2012 CFS Advisory Committee meeting Dr. Sandra Kweder, Deputy Director of the Office of New Drugs at the FDA stated, “When there is confusion, lack of consensus…
Read MoreRedefining POTS so that Everybody Understands
“Redefining POTS so that everybody understands: a primary care pediatric sports medicine perspective and review” Presented by Dr. Craig Colebey Postural Orthostatic Tachycardia Syndrome or POTS is a disabling disorder, representing “a common pathway” for multiple different causes. The heterogenous nature of its pathophysiology presents a challenge in its diagnosis and treatment. I present…
Read MoreA Report of Research Progress in 2016
Because of the investment of many supporters – donors large and small – the Bateman Horne Center (BHC) has been able to partner with cutting-edge researchers across the globe. BHC works directly with researchers to enroll well-categorized patients into their research, providing samples with material transfer agreements in place so that we continue to learn from…
Read MoreA Report of Clinical Progress in 2016
Improved objective diagnosis and the ability to assess treatment outcomes, has made many aspects of MECFS and FM appear before my eyes. I am committed to infusing the medical community with this information to dramatically improve patient diagnosis and treatment. Careful observation of 10 minute NASA Lean test results as part of the CDC multisite…
Read MoreGlobal Report of Progress with Lucinda Bateman, M.D.
An ME/CS Progress Report Lucinda Bateman, MD, BHC Founder and Medical Director, is actively engaged in ME/CFS and FM thought leadership across the globe. In October she was on the road to take part in and advance the discussions that lead to progress. In a few short weeks she participated in: October 8th – SMCI Scientific…
Read MoreWhat’s the Buzz – October
Buzz – October: Each month we scour the Internet to bring you a summary of news articles, blogs and research publications we think you’ll find interesting for our What’s the Buzz post. This month, Suzanne D. Vernon, PhD, BHC Research Liaison, highlights and summarize two recent research publications for you: The Importance of Measuring Symptoms ME/CFS is…
Read MoreExploding Myths of Chronic Illness in Family Life
Presented by Heather Jarman When serious illness is diagnosed in a young person, parents are often the first people called upon to be medical caregivers for their child. Few parents are adequately prepared for the enormity of the challenges associated with such a massive life change, regardless of a child’s age. Part of making the…
Read MoreSimple Way to Assess Orthostatic Intolerance
NASA 10 Minute Lean Test* Orthostatic intolerance (OI) is an umbrella term used to describe abnormal autonomic nervous system response to orthostatic challenge. Orthostatic hypotension (OH), neurally mediated hypotension (NMH) [or neurogenic hypotension] and postural orthostatic tachycardia syndrome (PoTS) are terms used to describe variants of this response. The new evidence-based IOM clinical criteria for…
Read MoreSimple, Effective Tools for Managing MECFS, FM
While there is no cure, FM and ME/CFS patients under her care often tell Dr. Bateman they are much better than they used to be. Though each patient is unique, Dr. Bateman has focused practical treatment advice on some common truths evident from treating hundreds of patients. She finds that this applies to almost all…
Read MoreBateman Horne Center Response to NIH RFI
BHC prepared the following response the NIH Request For Information (RFI) regarding the future of ME/CFS research Sixteen different centers within the NIH sought input concerning new research strategies for ME/CFS. They asked patients and advocates to tell the Trans-NIH Working Group on ME/CFS what kind of opportunities they see for studying the illness, what technologies and…
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