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Posts Tagged ‘ME/CFS’

BHC Program and Research Update

BHC’s mission is to empower patients, advance research, and improve clinical care. What is happening to further those goals? At the November education meeting, Dr. Lucinda Bateman and Dr. Suzanne Vernon shared updates on the programs BHC is developing to ensure that this mission is accomplished.  Highlights include development of a patient education program to empower patients, a practitioner education program that will improve clinical care, and implementation of a major research grant to advance the search for biomarkers.

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ME/CFS and Related Illness: Putting It All Together

Understanding how ME/CFS and Fibromyalgia are related to and affected by other illnesses is key in helping patients find relief from symptoms. At the BHC Education Meeting in October, Dr. Nathan Holladay gave a broad view of the key aspects of the various problems that can cause these diseases or make them worse, including infections, immune system issues, and mitochondrial, metabolic, and endocrine dysfunction. Making the connections between these illnesses can help doctors and patients decide on customized treatment methods rather than “one-size-fits-all” treatments.

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Dr. Derya Unutmaz Explains Collaborative Research Center “CRC” with BHC

Derya Unatmaz of Jackson Laboratories explains the partnership between Bateman Horne Center,  Jackson Laboratory, and many other collaborators as part of our exciting new research. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating illness that afflicts up to two million individuals in the US and lacks both widely accepted therapies for its management as well…

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What I Learned from the NASA 10-Minute Lean Test

What I Learned from my NASA 10-Minute Lean Test

Written by a patient who participated in a BHC research study to validate a new protocol used to assess orthostatic intolerance. Here she shares what she unexpectedly learned from her NASA 10-Minute Lean Test at BHC To be perfectly honest, when I decided to participate in the NASA Lean Test Research study at BHC, I…

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Building the Ranks of Skillful and Informed Medical Providers

informed medical providers

BHC Strategies for Bringing Doctors up to Speed on ME/CFS and FM  presented by Lucinda Bateman, MD, BHC Founder and Medical Director Improving the way medical providers understand, diagnose, and treat ME/CFS and Fibromyalgia is critical to progress and  a primary focus of the Bateman Horne Center. At the August 2nd BHC Education Meeting, Dr. Bateman shared her…

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Welcome to the Microorganism Hotel

Gut Microbes

Gut Microbes and ME/CFS   Theresa Dowell is a family nurse practitioner and physical therapist. She has suffered from CFS for 12 years. It was her experiences as a CFS patient that motivated her to start a medical clinic in Flagstaff, Arizona dedicated solely to the treatment of Chronic Fatigue and Fibromyaglia. She comes to…

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CFSAC Education Workgroups Seeking Patient Input

CFSAC Feedback Surveys

BHC has converted their questions into a simple online questionnaire The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). Administrative and management support for CFSAC is provided by…

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NASA 10-Minute Lean Test

10 Minute Lean Test

A Simple Way to Assess Orthostatic Intolerance On June 7, 2017, at the monthly BHC Education Meeting, Pelle Wall, BHC Research Coordinator, reviewed the procedure and shared information about the research underway. Orthostatic intolerance (OI) is an umbrella term used to describe abnormal autonomic nervous system response to orthostatic challenge.  Orthostatic hypotension (OH), neurally mediated hypotension (NMH) [or…

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Dream Teams Assemble to Advance Research

Research Dream Team

“Advancing Research” is central to Bateman Horne Centers’ mission of empowering patients and improving clinical care for ME/CFS and FM.  The trick of course is figuring out the best way to advance research. This is a decision any organization targeting research into these complex conditions must wrestle with. At the 2016 IACFSME conference it was…

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Patient Voice – Meditate to Find Peace

Meditate to Find Peace

Three years ago, Megan Hastings began most mornings with a quick run and some meditation. Today, the effects of her illness make running impossible, but she finds she can meditate to bring comfort and peace. The practice helps her to reduce stress, increase self-awareness, happiness and acceptance. Megan, mother to three and devotee to her best friend, has a…

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