Posts Tagged ‘living with chronic illness’
Education Meeting: Understanding the Neuroscience of Pain
Please join BHC and our community for our February Education Meeting, “Pain Wars: Understanding the Neuroscience of Pain” with Dr. Matthew Nelson PT, DPT, TPS. In an easy to understand and fun approach, Dr. Nelson will explain and discuss the neuroscience of pain, and how physical therapy can play a role in treating pain for…
Read MoreBateman Horne Center’s Journey
Dr. Bateman delivers an update on the progress and impact BHC has made in the last five years as a 501 (c)3 nonprofit dedicated to those suffering from ME/CFS and FM. She updates the community on our move towards a multi-specialty clinic and a teaching institution.
Read MoreFatigue, Pain and Sexual Health
Navigating intimacy with your partner can be hard enough without the added stressors of ME/CFS and fibromyalgia. We realize that discussing intimacy and sex may be taboo for some, but are nevertheless integral in a holistic view of health for every individual. We urge you to begin to break apart this taboo if it exists…
Read MoreEmpowerment Through Preparation
Living with ME/CFS or fibromyalgia, important, energy consuming events can be absolutely overwhelming and impossible. In September’s education meeting, Linda Milne – a longtime patient and community member of the Bateman Horne Center – shares her knowledge about preparing for natural disasters, travel, and volunteering while living with chronic illness. Empowerment through Preparation Medical complications…
Read MoreNIH Announces Precision Medicine Initiative
Research tends to neglect ME/CFS and FM – until right now. Precision medicine is the emerging scientific idea that medical treatment can and should be maximally efficient by tailoring medicine and healthcare to individual circumstances. Current research studies, however, do not have the size and diversity necessary to produce enough statistical power for individualized treatments.…
Read MoreA Consensus-Driven ME/CFS Clinician Coalition Takes Shape
On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature of the agenda, the enthusiastic…
Read More“Unrest” Panel Discussion
Jen Brea’s movie, Unrest, is bringing attention to the struggles that people with ME/CFS face. This award-winning film is available on Netflix, Amazon, and your local PBS station, and if you haven’t seen it yet, block out some time to take a look. Jen turns an unflinching camera on her life and the lives of…
Read More“Normal Town” by Rebecca Adams
One morning three years ago, I woke up early determined to do something “that normal, healthy” people do. I donned a t-shirt and sweats, went to the gym, and jogged on the treadmill for 20 minutes. No big deal, right? Think again. The aftermath of my 20 minute stay in “Normal Town” earned me a…
Read MoreKeeping Spirits Bright: Managing the Post-Holiday Letdown
Some people, especially those with chronic disease, experience depression and/or seasonal affective disorder (SAD) after the holidays are over. Dr. Stuart Drescher, a psychologist experienced in working with patients with chronic diseases including ME/CFS and Fibromyalgia, gives tips on how to manage the letdown that often occurs in January and February, when the holidays are over and the days seem dark and dreary.
Read MoreWhen Mommy Can’t Dance: How to Be a Chronically Ill Mom
It’s a hard to be a sick mom. For most mothers, a few days of illness may mean a back-up of laundry and a night or two of frozen pizza or cold cereal for dinner. For those of us moms that are chronically ill, it’s a whole other ball game. Certainly we have to adapt, get creative, and employ as many mom hacks as we can (i.e. Amazon prime, grocery pick up, self-serve kid snacks, and yes, we still have an above average number of cereal dinners). Beyond the physical demands and limitations, however, are the mental and emotional obstacles that we face. The mom guilt is present enough when you are healthy; it can be even more crushing when you are not.
Read More