Posts Tagged ‘Fibromyalgia’
NIH Announces Precision Medicine Initiative
Research tends to neglect ME/CFS and FM – until right now. Precision medicine is the emerging scientific idea that medical treatment can and should be maximally efficient by tailoring medicine and healthcare to individual circumstances. Current research studies, however, do not have the size and diversity necessary to produce enough statistical power for individualized treatments.…
Read MorePublic Awareness of ME/CFS : A Changing Story
Millions are missing. This tragically summarizes the status of research funding for ME/CFS and FM, the staggering financial blow to the economy as patients and caregivers decrease or withdraw their workforce involvement, and most importantly, the millions of people who are missing from communities all over the world due to these debilitating diseases. For decades,…
Read MoreBuilding Communities of Understanding and Hope
“Loneliness has the same impact on mortality as smoking 15 cigarettes a day, making it even more dangerous than obesity,” reports Douglas Nemecek, MD, Chief Medical Officer of behavioral health in a major new study on loneliness that outlines the prevalence and significance of loneliness and social isolation, as well as a handful of coping…
Read MoreUtah Jazz & Mountain America Credit Union “Pass It Along” to BHC
“Our entire team at Bateman Horne Center wishes to sincerely thank the Utah Jazz and Mountain America Credit Union organizations for this meaningful and important gift,” said Rob Ence, Executive Director of Bateman Horne Center. “We appreciate the faith and support of those who were part of the selection process and will apply these resources effectively in our cutting edge research and clinical care with the quest of improving the lives of those with ME/CFS and FM.
Read MoreKeeping Spirits Bright: Managing the Post-Holiday Letdown
Some people, especially those with chronic disease, experience depression and/or seasonal affective disorder (SAD) after the holidays are over. Dr. Stuart Drescher, a psychologist experienced in working with patients with chronic diseases including ME/CFS and Fibromyalgia, gives tips on how to manage the letdown that often occurs in January and February, when the holidays are over and the days seem dark and dreary.
Read MoreBHC Program and Research Update
BHC’s mission is to empower patients, advance research, and improve clinical care. What is happening to further those goals? At the November education meeting, Dr. Lucinda Bateman and Dr. Suzanne Vernon shared updates on the programs BHC is developing to ensure that this mission is accomplished. Highlights include development of a patient education program to empower patients, a practitioner education program that will improve clinical care, and implementation of a major research grant to advance the search for biomarkers.
Read MoreME/CFS and Related Illness: Putting It All Together
Understanding how ME/CFS and Fibromyalgia are related to and affected by other illnesses is key in helping patients find relief from symptoms. At the BHC Education Meeting in October, Dr. Nathan Holladay gave a broad view of the key aspects of the various problems that can cause these diseases or make them worse, including infections, immune system issues, and mitochondrial, metabolic, and endocrine dysfunction. Making the connections between these illnesses can help doctors and patients decide on customized treatment methods rather than “one-size-fits-all” treatments.
Read MoreBuilding the Ranks of Skillful and Informed Medical Providers
BHC Strategies for Bringing Doctors up to Speed on ME/CFS and FM presented by Lucinda Bateman, MD, BHC Founder and Medical Director Improving the way medical providers understand, diagnose, and treat ME/CFS and Fibromyalgia is critical to progress and a primary focus of the Bateman Horne Center. At the August 2nd BHC Education Meeting, Dr. Bateman shared her…
Read MoreLife Happens: Sleep, Weight, and Activity in Fibromyalgia
On July 5, Akiko Okifuji, PhD, presented “Life Happens” at the monthly Bateman Horne Center education meeting. Dr. Okifuji is a professor in the Department of Anesthesiology at the University of Utah. She has been actively conducting clinical research in chronic pain field, particularly in the area of fibromyalgia, for the past 20 years. She is…
Read MoreLiving With a Partner Who Has ME/CFS or FM
Chronic illness and marriage is a complicated combination. It’s rare to see or hear a healthy spouse’s perspective on their partner’s disease because it is a topic that can be very difficult – as much for the one speaking as for the one hearing it. With an estimated divorce rate as high as 75% among…
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