On March 15-16, leading ME/CFS clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The goal of this summit was to grow the collaborative network of disease experts, identify ways to expand their...
Patient Education
Pelvic Health and Chronic Illness
We were pleased to host Dr. Lauren Johnson—Doctor of Physical Therapy and current Director of the Pelvic Physical Therapy and Wellness Clinic in the Salt Lake City, Utah for our March Education Meeting. In this presentation, Dr. Johnson taught about pelvic health, how...
ME/CFS Clinicians Reconvene in Salt Lake City
Leading U.S. ME/CFS experts will convene for the Second Annual ME/CFS Clinician Summit on March 15-16 in Salt Lake City, Utah. This event is significant because it marks progress and forward momentum for this dedicated group as they tackle the ambitious goal of...
This is Personal: BHC’s Patient-First Perspective
Bateman Horne Center is guided by a board of directors that is intimately connected to ME/CFS and FM. Many have sons, daughters or are themselves managing an illness that has taken much of their life away. Most of you know that our organization is named after Dr. B, but many don’t realize it is also named after her sister, Shauna Horne.
Fatigue, Pain and Sexual Health
Navigating intimacy with your partner can be hard enough without the added stressors of ME/CFS and fibromyalgia. We realize that discussing intimacy and sex may be taboo for some, but are nevertheless integral in a holistic view of health for every individual. We urge...
Empowerment Through Preparation
Living with ME/CFS or fibromyalgia, important, energy consuming events can be absolutely overwhelming and impossible. In September’s education meeting, Linda Milne - a longtime patient and community member of the Bateman Horne Center - shares her knowledge about...
CFSAC: Current News in ME/CFS Federal Advocacy
ME/CFS advocacy groups play a significant role in educating wider community and government groups about ME/CFS. One such organization, the Chronic Fatigue Syndrome Advisory Committee (CFSAC), operates as an independent group providing formal recommendations on...
NIH Announces Precision Medicine Initiative
Research tends to neglect ME/CFS and FM - until right now. Precision medicine is the emerging scientific idea that medical treatment can and should be maximally efficient by tailoring medicine and healthcare to individual circumstances. Current research studies,...
Public Awareness of ME/CFS : A Changing Story
Millions are missing. This tragically summarizes the status of research funding for ME/CFS and FM, the staggering financial blow to the economy as patients and caregivers decrease or withdraw their workforce involvement, and most importantly, the millions of people...
Navigating the School System with Chronic Illness
School can be an exceptionally challenging struggle for students with ME/CFS and FM. This May, in our monthly education meeting, guest speaker Doctor Lane Valum shared crucial strategies for how to work with, instead of against, the school system in getting students...
Building Communities of Understanding and Hope
“Loneliness has the same impact on mortality as smoking 15 cigarettes a day, making it even more dangerous than obesity,” reports Douglas Nemecek, MD, Chief Medical Officer of behavioral health in a major new study on loneliness that outlines the prevalence and...
A Consensus-Driven ME/CFS Clinician Coalition Takes Shape
On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The...