Stuck with ME Let me tell you a little bit about ME I am a monstrous intruder I am your worst nightmare You do not want an invasion from ME I break in through the tiniest cracks anyway There is no avoiding ME I creep in when you least expect ME I am a perpetual thief...
BHC News
ME/CFS Inpatient Study Findings – BHC’s Statement
Since the recent release of the NIH intramural publication detailing findings from the ME/CFS Inpatient Study, there has been a whirlwind of impassioned commentary. While we harbor mixed sentiments about the paper, we've committed professionally to maintaining an open...
How to Be a Demanding Diplomat as a Severe ME/CFS Caregiver
Galen Warden is the mother of an adult son with severe ME/CFS. Bateman Horne Center partnered with her to provide essential guidance on caring and advocating for individuals with ME/CFS. This blog post includes: Galen's video presentation Galen's presentation slides...
Jennifer Bell, APRN, FNB-BC, Medical Practitioner
"Over the last 28 years, I have mostly worked in rural primary care settings in Maine and Hawaii. I never would have thought that my rural health care experience would be a perfect training ground for managing post-infectious fatigue syndromes. Rural medicine taught...
Long COVID Treatment Trial
This past summer, we completed an open-label, proof of concept trial using a combination of valacyclovir, the generic form of Valtrex, and celecoxib, the generic form of Celebrex to see if it improved symptoms in women sick with Long COVID. The combination of these...
A Year of Successful Medical Education
Today we are marking the successful first year of the Medical Education Resource Center (MERC) at BHC, supported by Open Medicine Foundation with a message from our Education Director, Tahlia Ruschioni. I am often asked when we will know that our medical education has...
Leaky Gut, Suppressed Immune Response, & PEM
I met Armin Alaedini in 2008 at a meeting in San Francisco that was about solutions for Lyme and other tick-borne diseases through cutting edge science. I was fascinated by his presentation on immunological findings in post-treatment Lyme disease and I approached him...
Caregiver Guidance
Appendix 2: When someone you care about experiences a crash, it can be scary and leave you feeling helpless. This resource aims to equip you with knowledge and insights from caregiver-to-caregiver on ways to support and alleviate the suffering of the person experiencing the crash (referenced below as the patient).
Crash Care Kit Essentials
Chapter 11: While living with ME/CFS, it is vital to learn the art of preventing and minimizing PEM and a subsequent crash. While not in a crash state, familiarize yourself with resources that can assist you in conserving energy and apply these following concepts to your everyday life.
The Cost of ME/CFS: An OT’s Lived Experience
Occupational and physical therapists have traditionally been trained from a rehabilitation perspective to treat a wide or diverse range of medical conditions. Many principles of rehabilitation can be applied to various spectrums of chronic health conditions....
An Incredible Lifelong Impact
As part of Bateman Horne Center's mission, we train upcoming and current medical professionals and researchers to help be a product of change in the medical and scientific fields. This month we hear from Haley Southwick, DNP who recently completed a 330 hour training...
Travel and Crash Considerations
Chapter 14: Traveling, while wonderful, can put you at risk for a crash. The increased energy expenditure physically, cognitively, and emotionally can use up your energy reserves more quickly than you would think. Here are some tips that may help you have less chance of crashing and use your energy more slowly.