"Over the last 28 years, I have mostly worked in rural primary care settings in Maine and Hawaii. I never would have thought that my rural health care experience would be a perfect training ground for managing post-infectious fatigue syndromes. Rural medicine taught...
News & Blog
Long COVID Treatment TrialÂ
This past summer, we completed an open-label, proof of concept trial using a combination of valacyclovir, the generic form of Valtrex, and celecoxib, the generic form of Celebrex to see if it improved symptoms in women sick with Long COVID. The combination of these...
A Year of Successful Medical Education
Today we are marking the successful first year of the Medical Education Resource Center (MERC) at BHC, supported by Open Medicine Foundation with a message from our Education Director, Tahlia Ruschioni. I am often asked when we will know that our medical education has...
Leaky Gut, Suppressed Immune Response, & PEM
I met Armin Alaedini in 2008 at a meeting in San Francisco that was about solutions for Lyme and other tick-borne diseases through cutting edge science. I was fascinated by his presentation on immunological findings in post-treatment Lyme disease and I approached him...
You & M.E.
You & M.E. Grief that remains a forever process. Revolving door, repetitious. The body I once took for granted. The endless energy I once had. Nothing good comes from resentment. Evaluating the symptoms present. They come and go, multisystem involvement. I feel...
Caregiver Guidance
Appendix 2: When someone you care about experiences a crash, it can be scary and leave you feeling helpless. This resource aims to equip you with knowledge and insights from caregiver-to-caregiver on ways to support and alleviate the suffering of the person experiencing the crash (referenced below as the patient).
Crash Care Kit Essentials
Chapter 11: While living with ME/CFS, it is vital to learn the art of preventing and minimizing PEM and a subsequent crash. While not in a crash state, familiarize yourself with resources that can assist you in conserving energy and apply these following concepts to your everyday life.
Brain Fog in ME/CFS and Long COVID
This week our paper about possible causes of brain fog in ME/CFS and Long COVID was published in Frontiers of Neuroscience. This study included a large group of ME/CFS patients, Long COVID patients, and matched healthy controls. We hypothesized that cognitive...
A Good Day…
-Margo This was submitted as part of the Reflections of ME/CFS and FM and Long COVID Awareness Day Virtual Event on May 9th, 2023. #MillionsMissing #MillionsMore #Hope4MECFS #Hope4FM #Hope4LongCOVID #patiencevoice
The Cost of ME/CFS: An OT’s Lived Experience
Occupational and physical therapists have traditionally been trained from a rehabilitation perspective to treat a wide or diverse range of medical conditions. Many principles of rehabilitation can be applied to various spectrums of chronic health conditions....
Jennifer Bell, APRN, FNB-BC, Medical Practitioner
"Over the last 28 years, I have mostly worked in rural primary care settings in Maine and Hawaii. I never would have thought that my rural health care experience would be a perfect training ground for managing post-infectious fatigue syndromes. Rural medicine taught...
Long COVID Treatment TrialÂ
This past summer, we completed an open-label, proof of concept trial using a combination of valacyclovir, the generic form of Valtrex, and celecoxib, the generic form of Celebrex to see if it improved symptoms in women sick with Long COVID. The combination of these...
A Year of Successful Medical Education
Today we are marking the successful first year of the Medical Education Resource Center (MERC) at BHC, supported by Open Medicine Foundation with a message from our Education Director, Tahlia Ruschioni. I am often asked when we will know that our medical education has...
Leaky Gut, Suppressed Immune Response, & PEM
I met Armin Alaedini in 2008 at a meeting in San Francisco that was about solutions for Lyme and other tick-borne diseases through cutting edge science. I was fascinated by his presentation on immunological findings in post-treatment Lyme disease and I approached him...
You & M.E.
You & M.E. Grief that remains a forever process. Revolving door, repetitious. The body I once took for granted. The endless energy I once had. Nothing good comes from resentment. Evaluating the symptoms present. They come and go, multisystem involvement. I feel...
Caregiver Guidance
Appendix 2: When someone you care about experiences a crash, it can be scary and leave you feeling helpless. This resource aims to equip you with knowledge and insights from caregiver-to-caregiver on ways to support and alleviate the suffering of the person experiencing the crash (referenced below as the patient).
Crash Care Kit Essentials
Chapter 11: While living with ME/CFS, it is vital to learn the art of preventing and minimizing PEM and a subsequent crash. While not in a crash state, familiarize yourself with resources that can assist you in conserving energy and apply these following concepts to your everyday life.
Brain Fog in ME/CFS and Long COVID
This week our paper about possible causes of brain fog in ME/CFS and Long COVID was published in Frontiers of Neuroscience. This study included a large group of ME/CFS patients, Long COVID patients, and matched healthy controls. We hypothesized that cognitive...
A Good Day…
-Margo This was submitted as part of the Reflections of ME/CFS and FM and Long COVID Awareness Day Virtual Event on May 9th, 2023. #MillionsMissing #MillionsMore #Hope4MECFS #Hope4FM #Hope4LongCOVID #patiencevoice
The Cost of ME/CFS: An OT’s Lived Experience
Occupational and physical therapists have traditionally been trained from a rehabilitation perspective to treat a wide or diverse range of medical conditions. Many principles of rehabilitation can be applied to various spectrums of chronic health conditions....