Honoring Our Illness Journey Today I am going to talk about something important which is honoring our illness journeys. When we talk about honoring our illness journeys what does that mean? Honoring includes 2 things: 1) respect, and 2) esteem. I think these are two...
What is Myalgic Encephalomyelitis Like? A Patient Perspective A project by Pillow Writers ©2024. The authors consent to the use of material in this publication, in whole or in part, for the purposes of public and medical education. Authored by Pillow Writers (2024)....
This cartoon with audio description was submitted for the awareness reflections video May 2024.
Sigh By Lori Harpell 3/25/2024 Feeling like a deflated balloon, Swirling in a dirty gutter... Hazel is confused, Bob is worn out... Bathroom to recliner, Recliner to bathroom... Hours resting with closed eyes, Listening to the quiet sounds outside... A bed bath, A...
Me and my ME Who is me, or rather who am I, and what is ME? My name is Dr Bear Lawrence, and I’ve enjoyed an interesting life. I’ve worked as a delivery driver in Norway, a helicopter tour pilot in the Caribbean, and a flight instructor in Oregon. In the UK I’ve been...
Stuck with ME Let me tell you a little bit about ME I am a monstrous intruder I am your worst nightmare You do not want an invasion from ME I break in through the tiniest cracks anyway There is no avoiding ME I creep in when you least expect ME I am a perpetual thief...
Persephone Enters the Underworld/Thanksgiving Table 11/26/23 Grieve for me Mother because I am gone. No, I was not stolen or taken. I did not fall, Slip. Truthfully I cannot tell you how I got within the winding corridors of death. But here I am. No, Mother I will not...
**Trigger Warning. This poem may be difficult to read for some individuals. Please take care. Here is a link to BHC's Crisis Resources page.** Slowly Dying I'm on earth, and I no longer feel like I'm living; instead, I'm slowly dying. It's like being in a...
Since the recent release of the NIH intramural publication detailing findings from the ME/CFS Inpatient Study, there has been a whirlwind of impassioned commentary. While we harbor mixed sentiments about the paper, we've committed professionally to maintaining an open...
Galen Warden is the mother of an adult son with severe ME/CFS. Bateman Horne Center partnered with her to provide essential guidance on caring and advocating for individuals with ME/CFS. This blog post includes: Galen's video presentation Galen's presentation slides...
Honoring Our Illness Journey Today I am going to talk about something important which is honoring our illness journeys. When we talk about honoring our illness journeys what does that mean? Honoring includes 2 things: 1) respect, and 2) esteem. I think these are two...
What is Myalgic Encephalomyelitis Like? A Patient Perspective A project by Pillow Writers ©2024. The authors consent to the use of material in this publication, in whole or in part, for the purposes of public and medical education. Authored by Pillow Writers (2024)....
This cartoon with audio description was submitted for the awareness reflections video May 2024.
Sigh By Lori Harpell 3/25/2024 Feeling like a deflated balloon, Swirling in a dirty gutter... Hazel is confused, Bob is worn out... Bathroom to recliner, Recliner to bathroom... Hours resting with closed eyes, Listening to the quiet sounds outside... A bed bath, A...
Me and my ME Who is me, or rather who am I, and what is ME? My name is Dr Bear Lawrence, and I’ve enjoyed an interesting life. I’ve worked as a delivery driver in Norway, a helicopter tour pilot in the Caribbean, and a flight instructor in Oregon. In the UK I’ve been...
Stuck with ME Let me tell you a little bit about ME I am a monstrous intruder I am your worst nightmare You do not want an invasion from ME I break in through the tiniest cracks anyway There is no avoiding ME I creep in when you least expect ME I am a perpetual thief...
Persephone Enters the Underworld/Thanksgiving Table 11/26/23 Grieve for me Mother because I am gone. No, I was not stolen or taken. I did not fall, Slip. Truthfully I cannot tell you how I got within the winding corridors of death. But here I am. No, Mother I will not...
**Trigger Warning. This poem may be difficult to read for some individuals. Please take care. Here is a link to BHC's Crisis Resources page.** Slowly Dying I'm on earth, and I no longer feel like I'm living; instead, I'm slowly dying. It's like being in a...
Since the recent release of the NIH intramural publication detailing findings from the ME/CFS Inpatient Study, there has been a whirlwind of impassioned commentary. While we harbor mixed sentiments about the paper, we've committed professionally to maintaining an open...
Galen Warden is the mother of an adult son with severe ME/CFS. Bateman Horne Center partnered with her to provide essential guidance on caring and advocating for individuals with ME/CFS. This blog post includes: Galen's video presentation Galen's presentation slides...
Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career - the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.