This blog post covers the fourth chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
ME/CFS
Emergency Contact & Health Information
This blog post covers the third chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
Potential Targets for ME/CFS Clinical TrialsÂ
Potential Targets for ME/CFS Clinical Trials This week showcased Bateman Horne Center’s strategic plan in action. The new research published in two separate papers in the prestigious journal, Cell Host & Microbe, provided further evidence that the microbiome and...
News Release: Microbiome Disturbances in ME/CFS
Signature microbiome disturbances in ME/CFS may point to biomarker and treatment trials New research reveals differences in the gut microbiomes of people with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) compared to those of healthy controls. ME/CFS is...
When a Crash Strikes
This blog post covers the second chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
What is ME/CFS and Understanding a Crash
What is ME/CFS and Understanding a Crash
Living with diseases like ME/CFS requires the affected individual to understand the defining characteristic of the disease, post-exertional malaise (PEM), and what it means when the body is pushed into a deep state of PEM, known as a crash. Awareness about how crashes occur, and how to meet the body’s critical needs during a crash, will afford the individual more control over their healing process and living with the disease.
Dr. Bateman on Biomarkers and Wild Socks
In January 2016, I cut my hair and started wearing wild socks, vowing to do so until we had a biomarker. It must have worked [!] because in 2017 BHC was included in two of the three National Institutes of Health (NIH)-funded ME/CFS Collaborative Centers grants...
The Germiest Place on Earth
The fatigue began at the top of my head and rolled down my body, as if I’d been standing under a cold shower. I felt flushed, chilled, achy, and unsteady on my feet. I had to lean against the display case of the cupcake shop, hoping my son wouldn’t notice. We were on...
Research Participant Data Integration
Over the past 5 years, 285 of you have participated in an NIH-funded research study at Bateman Horne Center! This study was led by The Jackson Laboratory (JAX), one of the three ME/CFS Collaborative Research Centers funded by the NIH. BHC was the Clinical Core for JAX...
From My Dream Medical Job to Life with ME/CFS
Before I got ME/CFS I was a women's health nurse practitioner working in a busy practice. I had spent years of education preparing for this dream job: two bachelor's degrees in biology and nursing and two master's degrees in philosophy of science and nursing. I loved...
Josie’s Story
I was only 11 years old when I got ME/CFS and my life changed forever. Before ME, I was a normal, happy kid. I loved going to school and got straight A’s. I was that crazy kid who couldn’t wait for school to restart after a break. I also loved music. I played the...
My 36-Year Journey with ME/CFS and FM
Prior to becoming sick, I worked a variety of jobs including an orthodontic receptionist, dental assistant, massage therapist, yoga instructor, answering service operator, waitress, cleaner, and costume jewelry designer and maker. I loved riding my ten-speed bicycle...