Frequently Asked Questions
Are you taking new patients?
BHC is not taking new patients, however we are working to evolve our clinic model to one that will accommodate more patients to receive care at our clinic. We do not yet have a timeline for this change.
Can I get on a new patient waiting list?
There is no waiting list for new patients at this time.
Can you recommend medical providers who specialize in ME/CFS or Long COVID?
We cannot endorse any one provider or institution but know of other organizations that have patient-driven provider directories. The extent, accuracy, and approach to care has not been validated by BHC, but this may serve as a starting place for you. We also recommend asking in online support groups and forums.
- Solve M.E. Patient and Caregiver Resource Guide: Finding a Doctor. This document provides guidance on finding a medical provider and includes links to resources such as a list of doctors who take individuals with ME/CFS and long COVID, along with a list of Facebook groups by state.
- AMMES Physician and Clinic Database
- #MEAction Find Your Doctor Directory
- Phoenix Rising ME/CFS Doctors Forum
I think I may have ME/CFS, where can I learn more about diagnosis?
I have POTS, where can I find information on this?
Where can I learn more about other conditions like mast cell activation syndrome, POTS, and small fiber neuropathy?
How can I learn more about pacing?
- Self-Paced Education Modules: Emerge Australia and Bateman Horne Centre have joined forces to offer self-paced education modules designed to support individuals living with ME/CFS, long COVID, and other infection and energy-limited associated chronic conditions.
Bridging expertise from Australia to the United States, these modules provide practical tools for managing PEM, pacing, and orthostatic intolerance, while offering caregivers and clinicians valuable insight into the lived experience and support needs of patients—working together to elevate the standard of care worldwide.
How can I find resources for where I live?
Where can I find a therapist specialized in chronic illness?
Where can I access medical provider education to either watch or share?
Anticipating Sugery or Anesthesia?
If I am a medical provider and want to join your educational offers, how do I sign up?
Email [email protected] with your NPI and we will add you to our provider listserv.
I am a caregiver and need help supporting my loved one, where do I start?
- Caregiver Wisdom is an online venture to support chronic illness caregivers. Current free offerings include: a monthly support group, a free online community that’s off of social media, and a blog with helpful posts.
- A support group for partner caregivers (please note all caregivers are welcome) takes place the first Sunday of each month at 12 p.m. PT / 3 p.m. ET. Focuses on monthly topics and has small breakout rooms for closer community connection. To be added to the email list, contact Kim at [email protected].
- #MEAction’s support group for all family caregivers takes place the third Saturday of each month at 12:30 p.m. PT / 3:30 p.m. ET. To be added to the email list, contact Denise at [email protected].
- If you are on Facebook, #MEAction has a Facebook group for caregivers
- If you are on Discord, Nia has started a channel for ME/Long COVID caregivers.
I am applying for disability; do you have recommended disability attorneys?
We do not maintain a list of recommended attorneys. Here are helpful resources for your application process.
How do I make a securities donation or include BHC in my legacy giving plan?
Email [email protected] to be put in contact with the appropriate team member.
Where can I access BHC’s research publications?
Our publications are linked at the bottom of the Research webpage.
I am no longer receiving emails from BHC and want to fix this.
Email [email protected] and we will help resolve the issue.
How can I access previous support group recaps?
Email [email protected] to request.
What other support groups does BHC know of?
- Action for ME (online youth support based in UK)
- BHC Support Group 2nd and 3rd Tuesday at 1 pm MDT
- Black COVID-19 Survivors
- CFS/ME Friends
- Health Stories Collaborative Creative Meetups
- International ME Support Chat
-
- 11am-1pm EST/ 5 -7pm GMT / 3-5am Melbourne time & 9-11pm EST/ 3-5am GMT/ 2-4pm Melbourne time
- Invisible Youth Support Group
- Long Hauler Advocacy Project
- Long COVID Families
- Massachusetts ME and FM Association Small Group Chats
- #MEAction Living w/ME Support Group
- #MEAction Long COVID Group
- #MEAction Seniors Connect
- #MEAction Pillow Crafters (Group Crafting Sessions)
- #MEAction Additional Groups
- ME/CFS Social Group
- ME/CFS phone support group
-
- Occurs on Saturday nights at 8pm, EST.
-
- Call: 609-746-1155. Punch in: 915110#. Group is open to all.
- State Specific Long Hauler Facebook Groups
- Surviving with ME
- The Mighty Group Directory
- Utah COVID-19 Long Haulers
- The Yarrow Collective’s Alternative to Suicide group is a weekly Zoom meeting. It’s a free resource for folks who are struggling that is nonclinical peer support. They also have chronic illness and disability support groups.
Are there organizations or groups outsides of the United States?
- Canadian Resources
-
- ICanCME
- Facebook group
- Emerge Australia
- European ME Alliance
- United Kingdom
Lucinda Bateman, MD, is a renowned clinician, researcher, and educator. Her Johns Hopkins University Medical School training instilled an approach to care that she has employed throughout her career – the patient comes first and the unknown or unexplained does not equate to a lack of proper and compassionate care. Since starting her own practice in 2000, she has served on six boards or committees, been the principal investigator for 45 studies, authored/coauthored 40 journal articles, served as adjunct instructor and adjunct assistant professor in the University of Utah Departments of Preventative Medicine, Internal Medicine, and Anesthesiology, and lectured around the world.