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Posts Tagged ‘core symptoms of ME/CFS’

What’s Next for the ME/CFS Clinician Coalition?

On March 15-16, leading ME/CFS clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The goal of this summit was to grow the collaborative network of disease experts, identify ways to expand their ranks and improve the clinical care of patients with ME/CFS, and accelerate…

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Progress in ME/CFS Subset Identification

When it comes to biomarker discovery and clinical trials, disease heterogeneity is the bane of clinical researchers existence. I am showing my age here, but think of it like static on the radio: too much noisy static makes it hard to hear the nice music sound and when you tune in, the signal is loud…

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A Consensus-Driven ME/CFS Clinician Coalition Takes Shape

On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature of the agenda, the enthusiastic…

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Standardizing Measurement of ME/CFS Core Symptoms

core symptoms of ME/CFS

Dr. Suzanne D. Vernon, BHC research liaison, explains how the IOM report defining the core symptoms of ME/CFS also define the BHC research roadmap. ________ At the October 2012 CFS Advisory Committee meeting Dr. Sandra Kweder, Deputy Director of the Office of New Drugs at the FDA stated, “When there is confusion, lack of consensus…

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