ME/CFS
Building Communities of Understanding and Hope
“Loneliness has the same impact on mortality as smoking 15 cigarettes a day, making it even more dangerous than obesity,” reports Douglas Nemecek, MD, Chief Medical Officer of behavioral health in a major new study on loneliness that outlines the prevalence and significance of loneliness and social isolation, as well as a handful of coping…
Read MoreWe See You. You are Not Missing to Us.
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.
Read MoreAccelerating ME/CFS Research Through Brain Donation
So often, people with ME/CFS are told to “get over it” since “it’s all in your head.” While this is devastatingly inaccurate, there is an unintended glimmer of truth here – the brain plays an important role in ME/CFS. According to Research Director Suzanne Vernon, “The brain is the command and control center. There is…
Read MoreProgress in ME/CFS Subset Identification
When it comes to biomarker discovery and clinical trials, disease heterogeneity is the bane of clinical researchers existence. I am showing my age here, but think of it like static on the radio: too much noisy static makes it hard to hear the nice music sound and when you tune in, the signal is loud…
Read MoreA Consensus-Driven ME/CFS Clinician Coalition Takes Shape
On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature of the agenda, the enthusiastic…
Read MoreDr. Bateman Summarizes the ME/CFS Clinicians’ Summit
When Dr. Lucinda Bateman attended an ME/CFS research symposium recently, she had no idea of the challenge she would face. At the conclusion of the symposium, Dr. Ron Davis, a leading researcher in the ME/CFS field, challenged her to hold a similar ME/CFS summit for clinicians. Dr. Bateman isn’t one to back down from any…
Read MoreUtah Jazz & Mountain America Credit Union “Pass It Along” to BHC
“Our entire team at Bateman Horne Center wishes to sincerely thank the Utah Jazz and Mountain America Credit Union organizations for this meaningful and important gift,” said Rob Ence, Executive Director of Bateman Horne Center. “We appreciate the faith and support of those who were part of the selection process and will apply these resources effectively in our cutting edge research and clinical care with the quest of improving the lives of those with ME/CFS and FM.
Read More“Unrest” Panel Discussion
Jen Brea’s movie, Unrest, is bringing attention to the struggles that people with ME/CFS face. This award-winning film is available on Netflix, Amazon, and your local PBS station, and if you haven’t seen it yet, block out some time to take a look. Jen turns an unflinching camera on her life and the lives of…
Read More“Normal Town” by Rebecca Adams
One morning three years ago, I woke up early determined to do something “that normal, healthy” people do. I donned a t-shirt and sweats, went to the gym, and jogged on the treadmill for 20 minutes. No big deal, right? Think again. The aftermath of my 20 minute stay in “Normal Town” earned me a…
Read MoreKeeping Spirits Bright: Managing the Post-Holiday Letdown
Some people, especially those with chronic disease, experience depression and/or seasonal affective disorder (SAD) after the holidays are over. Dr. Stuart Drescher, a psychologist experienced in working with patients with chronic diseases including ME/CFS and Fibromyalgia, gives tips on how to manage the letdown that often occurs in January and February, when the holidays are over and the days seem dark and dreary.
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